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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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Oops ... I meant Sonata.
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#2 | ||
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Junior Member
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Thanks...I'm going to discuss these options with my neuro. My joints are starting to hurt, and my face is swelling a bit. I'll be bringing that up too. I doubt the joints aching are MG related. I'm 37, it may just be age! Lol
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#3 | ||
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New Member
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Before I was diagnosed with Myasthenia I was having a job reading my book in bed so I got an iPod and downloaded some audio books and listen to them instead.
I find during sleepless spells that listening to my iPod audio books either sends me off to sleep, or I lay there resting listen to the story. (I always set the iPod Timer for Sleep Mode of 30 minutes so that if I do drift off I don't lose my place) |
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#4 | ||
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Junior Member
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Rainbow...that is an excellent suggestion. Thank you
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#5 | |||
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Member
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I got on Ambien, and it made me go totally insane. Whacko. I would totally forget stuff from one second to the other. If I can't sleep, I just lay there. I read on my Kindle and it helps just so the book isn't too interesting.
I like pot, but I am terrified of the legal problems. If I get a drug arrest, I will lose my job, my insurance, and life will not be worth living. If it becomes legal, I will certainly try it for the MG. It is not worth the risk since it is illegal. I wouldn't even have to be convicted to get fired. And I will never find a job as easy as this one. |
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#6 | ||
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Junior Member
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Wondering, can pot be any worse than the rest of the meds I'm been on for the past ten years?? Lol
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#7 | |||
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Member
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Sleeping pills, benzodiazepams, narcotic pain killers, tobacco, and alcohol are all legal. Does that make them safer than pot? I seriously doubt it.
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#8 | ||
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Member
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Maybe others that are pretreated with Benadryl prior to having IG infusions have the same experience as I. I sleep most of the time. Antihistamines make you sleepy.
I have trouble sleeping and maybe 1 or 2 times a week when I want to get a good nights sleep I take 1 and sometimes 2 Benadryl. Tony |
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#9 | |||
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Member
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But Benadryl is an anticholinergic. It does the exact opposite thing that Mestinon does.
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#10 | ||
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Junior Member
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It seems to really be a no win situation for us MGers. One pill helps one way but hurts in another. I do have a wonderful neuro that listens and isn't afraid to try new things. Hoping for an improved solution for sleep come my appointment Monday!
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