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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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I'm wondering what other MGer's out there do to truly get a good nights rest. I am currently on 20mg of hydroxyzine per night, yet, I don't wake up feeling rested. (I am sleeping 4-6 hours per night.) I've tried calming teas, epsom salt baths before bed, no eating, and other things. What are some of the things/medicines you all have found to be effective? I go back to my neuro on the 30th and would like to discuss other options. Any input would be wonderful. I've struggled with MG for 10 years now, and it only seems to be getting worse...not ready to just give in though. I need sleep...I need to wake up feeling refreshed. :/
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#2 | |||
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Junior Member
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This may sound like a bad thing but i was desperate.
I haven't had a good night sleep in like 3 months, i am always sleepy and tired. i am 23 but lately ive looked like i'm 35. I recently visited a friend and he was smoking marijuana... i smoke a little bit and i slept 10 hrs straight and woke up feeling like a baby. The next day i took my dose of mestinon(a pill and a half) at around 7am and didnt need another one until 7pm. i am in NO WAY saying we should all go out and get stoned, but I AM open to the possibility of using this as an emergency type of thing. -G. |
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#3 | ||
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Member
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I use Lunesta. Insomnia totally sucks.
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#4 | ||
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Junior Member
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#5 | |||
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Junior Member
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I googled it... lol
a lot of people are pro cannabis others are against it. i am neither. All i know is that i smoked friday night and saturday i only needed to take mestinon twice. Today i didn't need to take it until 1pm. (i usually need to take it at around 7 am so by the time i get up at 8 it has kicked it already - and i take a pill and a half every 4 hours or the leg weakness and slurred speech begin) i stay away from sleeping pills, they relax me too much and i feel like a raggedy doll. it makes me feel worse. Hope you find something that helps, i know how sucky it is to be tired ALL THE TIME! |
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#6 | ||
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Member
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The Lunesta does not really leave me "drugged" feeling. I take it around 9-10 pm and usually stay in bed until 6:30 or 7 the next morning. The worst side effect is an odd taste in my mouth but I've learned to work around that.
There are some good coupons available for Lunesta. I've had 12 mos with $0 copay--a whole year free! Pretty nice. |
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#7 | ||
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New Member
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I have found Tart montmorency cherry juice to be very helpful for helpin me sleep. You can find in most health stores. It should be unsweetened, no additives.
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