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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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08-02-2012, 03:04 PM | #21 | ||
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You will be able to see what should cause anyone to show anger toward the " fraud and deception assoc. " better known as the FDA and the " american malpractice assoc. " better known as the AMA. web links will be avail. at a 10 post count. i have been down the chemical road a few times in my younger years, when i did not know any better. i am over the hump on MG at 18 months in and hopefully a few who are on the current chemical train will ask some hard questions, do some navel gazing about standard therapies proposed and venture off in a new direction. not really interested to argue the fine points of what works or does not. the links from a few accredited people on auto immune will go up in this thread and you can decide what you want to believe. it is really is that simple. s |
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08-02-2012, 04:08 PM | #22 | ||
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NUTRITION? What ever happened to a good ATTITUDE ? Spontaneous remissions are extremely rare in MG but thatīs a possibility and can happen to anyone regardless of the physical or mental constitution they find themselves in at the time. It looks like itīs not just the toxic cocktails doing the poisoning around here..... Last edited by Anacrusis; 08-02-2012 at 04:33 PM. |
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08-02-2012, 04:11 PM | #23 | |||
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If I have to give up coffee, forget it.
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Celeste |
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08-02-2012, 04:25 PM | #24 | ||
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my attitude was fine until i started to see how slanted, corrupt and poisoned the medical playing field really is. you cannot change it as the culture runs deep. full metal jacket exposure is the only tool left in the box. s |
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08-02-2012, 04:26 PM | #25 | ||
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08-02-2012, 04:26 PM | #26 | ||
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Senior Member
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Re: the raw, vegan diet: are you taking B12 supplements, and if so, are you sure you're absorbing them properly? You can go for a while without B12, but after a few years a deficiency can cause extreme neurological symptoms (some of them are similar to the symptoms of MG). These can creep up on you gradually. If you start to get symptoms like you describe again, don't just assume it's the MG coming back--consider the possibility of a B12 deficiency as well. There are easy blood tests for that.
Vegans recognize that their diet doesn't provide B12, and that raw-food vegans are at special risk (because processed food marketed to vegans is often fortified with B12). This is not controversial. Please be careful. I think the gut destroys B12 before the body can use it, so you need a sub-lingual variety, and you should have blood tests to make sure you're absorbing it. Abby |
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08-02-2012, 04:33 PM | #27 | ||
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Senior Member
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I just wanted to say: it's unfair to judge all drugs by the side-effects of Prednisone. We all know it's nasty stuff. You and I are lucky: our MG symptoms aren't life-threatening, so we have the luxury of turning it down.
Yes, death is a possible side-effect of Prednisone. It's also a side-effect of not being able to breathe. When you can't breathe, or can't swallow without choking, you need a treatment that is likely to work, and work quickly. You can put up with double vision for six months while waiting to see if the raw-food diet is going to work, but you can't put up with not being able to breathe for six months. I'm on Imuran. No side effects yet that I know of, though I realize I'm taking a risk. It's made me a lot better. My doctors have not recommended Prednisone for me because of its side-effects. Your doctors should have discussed other options with you, too. Abby |
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08-02-2012, 04:37 PM | #28 | ||
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Banned User
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Starchy fried foods such as French Fries, potato chips, some baked goods, and many other items contain a chemical called acrylamide that has been shown to cause cancer and neurological problems in animals. s |
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08-02-2012, 04:39 PM | #29 | ||
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Banned User
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.................................... already there, and thx for the info. update.... s |
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08-02-2012, 04:48 PM | #30 | ||
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Banned User
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i agree with what you are saying but the problem is getting off the cocktail bandwagon. most never do.......... once the liver blows out from years of filtering chemicals thru you do not need to worry about it any longer. as soon as they allow me to post weblinks, another side of real heath care will be revealed. s s |
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