These words almost jumped off the page at me.....
I went a whole year thinking I was the only one on the entire planet with this exact same diurnal variation of breathing difficulty. Thanks SO much PhotoBug for sharing your experience on this thread….

Anacrusis

A quick question.......

Do you notice it is much harder to breathe through your nose than your mouth during periods of heavier restrictive breathing? (The reasons for that happening I guess would be obvious ones) It does amaze me how you can survive with sometimes virtually inert lungs over a period of many years.......

Anacrusis

Status:
Working on finding allegiances in my own country´s health system
Working on making an appointment with a highly experienced pulmonologist abroad

The extra effort needed to take air in through the nose is like the extra effort needed to pull air through the nozzle of a set of bellows with a blocked valve!!! That´s what it felt like during all those episodes of restrictive breathing…..

http://en.wikipedia.org/wiki/Bellows

I am 3 weeks out from my IVIG (usually get it every 2, but holidays make scheduling a little harder I guess! ick).. I am sooo short of breath by the end of the day and it really does cause some pretty darn good chest pain.. Yall have this?? It's just like an elephant sitting on my chests, or like my abs (which are also weak) are detaching from my lower part of my ribs (i had that sensation when pregnant - ouch).. anyhow. now that I am sitting down resting from my day it is better but , it is so anxiety provoking to not be able to breath well!!!