Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 09-01-2012, 08:01 PM #1
sunshine_13's Avatar
sunshine_13 sunshine_13 is offline
Junior Member
 
Join Date: May 2012
Location: Florida
Posts: 17
10 yr Member
sunshine_13 sunshine_13 is offline
Junior Member
sunshine_13's Avatar
 
Join Date: May 2012
Location: Florida
Posts: 17
10 yr Member
Confused nervous...

Sorry guys, i just need to vent!

I have been dating a guy for a few weeks now.
I really like him, but I don't know how to tell him about my MG.

My ex fiance broke up with me a few months ago because MG was taking a bigger toll on him than me. haha

I've been able to keep it from him, but last night after dinner and a movie i was exhausted - i began to slur my speech. I know he noticed, but didn't say anything.

How do you deal with relationships?
what helps?
sunshine_13 is offline   Reply With QuoteReply With Quote

advertisement
Old 09-01-2012, 09:05 PM #2
southblues's Avatar
southblues southblues is offline
Member
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
southblues southblues is offline
Member
southblues's Avatar
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
Default

If he loves you like you are, then he is worth keeping. He will have to accept you for who you are. The old saying about you have to kiss a lot of frogs to find that charming prince is really true. I hope that you find a really special person to spend your life with. If he is that special one, then he will stick by you. You can't hide your true self. I know that this whole thing is hard. I would tell him the truth right away or he may think that it is something worse.
__________________
Celeste
southblues is offline   Reply With QuoteReply With Quote
Old 09-02-2012, 03:15 AM #3
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Default

Quote:
Originally Posted by sunshine_13 View Post
I've been able to keep it from him, but last night after dinner and a movie i was exhausted - i began to slur my speech. I know he noticed, but didn't say anything.
How do you deal with relationships?
what helps?

Agree with the last post – couldn´t have put it better myself if I tried.
This guy could be a really nice guy – but he has to be a really nice guy to YOU.
You got slurred speech which is a part of you and if he should end up being embarrassed by that whilst you´re both out in public at some stage then that would tell an awful lot about him and an awful lot about your future together. You need a guy who can make you feel good about yourself - slurred speech and all!

TALK asap! Hope it works

Anacrusis
Anacrusis is offline   Reply With QuoteReply With Quote
Old 09-02-2012, 07:24 AM #4
StephC StephC is offline
Member
 
Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
StephC StephC is offline
Member
 
Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
Default

I agree with comments but wanted to add that I had some difficulty walking yesterday into Walmart and I realized that people probably thought I was drunk or on drugs. I don't care about people I don't know but I am sure you don't want him to think you are a druggy or alcoholic!

Good luck, let us know how it goes (I am single and hope to be well enough to date someday soon)
StephC is offline   Reply With QuoteReply With Quote
Old 09-02-2012, 09:09 AM #5
sunflower1116 sunflower1116 is offline
Junior Member
 
Join Date: May 2012
Posts: 19
10 yr Member
sunflower1116 sunflower1116 is offline
Junior Member
 
Join Date: May 2012
Posts: 19
10 yr Member
Default

Be honest and let him know- 1 of 2 things will happen:

He will:
A) not be able to handle it and leave which would really just save you time more heartache, because anyone you are with has to be in it for the long haul.

or

B) accept you for you, take all your good qualities plus the crappy MG with it and accept that although you have MG it does not define who you are. If he does this you guys can plan dates that won't make you so tired- i.e. dinner OR a movie, but not both in the same night.


Hope this helps!
sunflower1116 is offline   Reply With QuoteReply With Quote
Old 09-02-2012, 09:50 AM #6
Southern Bell Southern Bell is offline
Member
 
Join Date: Apr 2011
Posts: 103
10 yr Member
Southern Bell Southern Bell is offline
Member
 
Join Date: Apr 2011
Posts: 103
10 yr Member
Default

I totally agree with everyone. You both need to start a relationship being honest with each other. There may be things about him that he's reluntant to tell you but if he realizes that you have the courage to tell him about your MG diagnosis he may open up too. And you can support each other.

I'm lucky that my MG/SPS diagnosis came after I had been married for 30 years. Of course my husband could have left me because he couldn't handle the uncertainty but from the beginning he told me that he wasn't going anywhere and we were going to fight this together. You have no idea how comforting that made me feel because I scared to death. I know alot of marriages breakup over money or illness so I feel very lucky.

Best of luck in whatever you decide.

Southern Bell
Southern Bell is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
nervous person vs.nervous patient john1947 Bipolar Disorder 0 06-28-2011 09:43 PM
lol...nervous Motors Mommy Multiple Sclerosis 10 05-26-2008 06:36 PM
I'm Nervous~ DM The Stumble Inn 80 03-08-2008 12:57 PM
Getting Nervous Rachael Thoracic Outlet Syndrome 14 11-26-2007 08:02 PM
Help!! NErvous mom!! hockeymom Traumatic Brain Injury and Post Concussion Syndrome 3 07-26-2007 10:34 PM


All times are GMT -5. The time now is 05:40 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.