Thanks all
Well, yesterday I had an awful day. I really had to drink enough, as not to get dehydrated! I cried so much.
And I think I'm getting an eating disorder or something, sometimes I just can't stop thinking about food...I crave weird stuff and I HAVE to eat it, I'm so hungry and think about all the foods. And then I cry because I already gained so much weight, and the stretch marks and my huuuuuge face and ....

@Ginny; yeah already been to a second opinion, he also just says "prednison = good for mg". They just only look at "their" disease. But he also said trying another medicine (ivig), but my own neurologist won't try it. And I can't go and get the other one to be my neurologist, because it's to far from where I live.

@Ana: Yeah, I'm already thinking about changing doctors...because well, I really think this is not the way for me. But I've already seen so many, and don't want another disappointment you know? But the end of this month I have an appointment, and Ill take my whole family with me!!!
I called psychiatrist yesterday, "we will call you to make an appointment...if we accept you". So...waiting.

I so know about not wanting to go try and find yet another doctor. It is the Gerbil wheel of going round and round, and you want to get off the ride.
If it meant your health and sanity, travel, do what you must to have better quality of life. I interviewed ( notice I said I interviewed) 4 pain specialists before I found one I wanted or trusted. One was so full of himself I received a 20 minute lecture, on the dangers of medications, and I never got to say a word. NOWAY....I don't want you to stop until you find the right combination of doctors that can help you. That IVG I have heard of, and I think there has been success with it. I know you have done the research on it. Did your Neuro give you a reason why he didn't want to try? I have two docs. now that don't agree. I tend to not do anything unless I get them in agreement, and yes I push them talking to each other. thats a miracle!
I wish you better days Raven. We may not have the same conditions, but I do have empathy for what you are going through. I do care. ginnie

I would suggest getting some actual psychiatric help. Your symptoms may or may not be caused from the meds, but in any case, with a good psychiatist and counselor on board, you could get someone to help advocate for you with your neurologist and provide coping techniques for you when the anxiety gets bad.

There are instances of steroids unmasking bipolar disorder (it happened to the newscaster Jane Pauley) and other psychiatric problems. Your situation sounds pretty complex, so it might be time to call in the experts.

Benzos are a like putting a bandaid on the issue. It covers it, but the wound is still there and the bandaid will wear off eventually. Drinking alcohol is also not helpful in the long run. Both can be really addicting and not particularly good for MG.

Good luck!

Probably one of the biggest things that a psychiatrist can do is to figure out whether the problems are caused by drugs, and if so, which drugs.

Yes, I agree with Southblues. However, sometimes simply eliminating the drug does not eliminate the symptoms, so in that case, having someone on board with knowledge on the subject could be invaluable. Life's too complicated as it is to live in emotional agony if not necessary.

Ah, well.
Im still waiting, but I really dont want to go to a psychiatrist.
Why? Because I have high standards on privacy.
They already know so much about me, and I dont want them know my thoughts
I can just say my head is messed up, i cantbe happy again, without actually going deeper into the subjects of the anxiety? Because hell, if your sick you cant have anything to youraelf anymore?
I believe its just not the way it should go.

I think "coping" with these problems are not an option. Thats what my neurologist said: its so you can talk about it. But thats not gonna help, because i talk about it everyday. But it doesnt help. This morning, i just had a feeling of intense anger, and i truly no idea why!
If these medicne caused me to poop my pants everyday, would they give me daiper?

@4 eyes, but there is no wound. Wish there was, then we could try and deal with it.

And anyway, im sure the problems are caused by the meds. I also have high bloodsugar, high cholesterol, all the cushing peoblems imaginable.
Whether it does or does not go away when stopping these meds, I dont know.
But if it wont go away, and the medicine caused irriversible damage, then my life would be over.

I am sorry you are suffering. That anger, is justified. There are times in a persons life to feel that way.
I don't blame you for wanting to keep some of your thoughts to yourself. It is hard enough thinking them. In this case, because you don't know what really is going on with the medications, that more than the psych evaluation, is really the reason to bring this profession on board. I don't enjoy talking to someone about private issues either. However if my meds. had something to do with how I felt, I would agree to go that route. I wish I could support you more in some mannor. I am here for you Raven, and I do feel your distress and pain. There are people who do care about you, and I am one. I hope this day brings some comfort to you. ginnie

.........................