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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-06-2012, 05:51 PM | #1 | ||
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I once took a dose of Prednisone and experienced the worst migraine with aura, along with agonising pressure behind one eye. I felt so ill, I actually called an ambulance.
I really want to try a steroid again but really don't want to go back to Prednisone - does anyone out there take a different one? Why is Prednisone the steroid of choice?! Are there any other options? Thank you!! <3 |
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09-06-2012, 06:25 PM | #2 | ||
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I think methylprednisolone is used a lot in Europe. There is also solumedrol (IV). Also, it "may" have been a coincidence about the migraine and unfortunately, there's only one way to test that theory. In the end, I think pretty much all steroids will have the same potential side effects. This is probably something you need to discuss with your doctor, and if you do give it a go, have a plan in case of pain (like not starting the script on a Saturday! LOL)!
It's always something, isn't it? Good luck with your decision. |
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09-06-2012, 06:51 PM | #3 | |||
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Does anybody know if dexamethasone is used in myesthenia gravis?
Edit: I just looked up a dexamethasone prescribing information thing. It warns that if it is used with acetylcholinesterase inhibitors (mestinon), it may make things worse.
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09-06-2012, 08:44 PM | #4 | ||
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Ugh, so sorry to hear that!!! Is this your first time on steroids?? are they giving it to you for the MG?
What are the "usual" bad side effects from steroids- i know bad sleeping etc.. but I have a bottle of prednisone sitting on my counter to take my first dose in the morning and I am NERVOUS.. throughout all of this I haven't tried taking any steroids.. so i'm hopeful - what if that was the missing link.. but what if it makes things worse and I regret it!! What's yalls experience? Lawgirl- good luck, keep us updated how it goes!! |
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