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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-08-2012, 06:16 AM | #1 | ||
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What does it do for MG?
I mean, it makes you relaxed but does it make you weak? Because there are people with mg (a girl on youtube for once) that say using weed has helpt them with there mg. I really want to try it, medicinally, tea or something. Tnx |
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09-08-2012, 12:44 PM | #2 | |||
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I created a monster.........
I haven't tried it since I have had MG. I am not in a medical marijuana state. I am also interested in the answer to this question. I have read people saying that it helps, but it doesn't seem that it would.
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"Thanks for this!" says: | ginnie (09-11-2012) |
09-08-2012, 01:08 PM | #3 | ||
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Elder
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I am not sure what MJ does for MG either. I am not in a legal state. I also believe in a persons right to try this. If you do, please be careful, the laws are so very harsh, and there is no compassion for those that are sick. That is the reason I don't. I can't imagin being in jail, missing the medications I do need to have quality of life. Maybe it isn't worth the try to put yourself at risk. Until our country allows freedom, we are in a kind of police state really. I graduated in 69' and I don't believe it is wrong. Being in custody would be a terrible wrong, and that wouldn't be worth the risk to me. I do care. ginnie
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"Thanks for this!" says: | SoftTalker (09-18-2013), southblues (09-08-2012) |
09-09-2012, 08:15 AM | #4 | ||
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Guest
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Well, lucky for me it is legal where I live.
I've read some more about it. I think it may work a bit like this: MJ can make you more relaxed -> less stress -> good for mg MJ lessens cramps caused by mestinon -> you can take more mestinon MJ lessens pain -> pain eats your energy -> you have more energy left So.... Yeah, but thats just my simple thought But I think the direct effect on our muscles is relaxation... And that's what worries me, I guess we're "relaxed" enough. But I still think Im going to try it, Ill keep you informed |
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"Thanks for this!" says: | ginnie (09-09-2012) |
09-09-2012, 03:17 PM | #5 | ||
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Junior Member
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someone i know has mg and smokes mj everyday and he says it helps in almost everyway. the physical relaxing of your muscles is a good thing for mg since your immune system is creating chemicals to react with the actylcholine that is created for any muscle use. it helps with any of the gi problems with mestinon. it also regulates your appetite and sleep schedule if ur having problems with prednizone. one of the only downsides is the relative strain it puts on your lungs. i hope this helps
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09-09-2012, 08:45 PM | #6 | |||
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Would it hurt your lungs if you used a vaporizer?
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"Thanks for this!" says: | ginnie (09-11-2012) |
09-10-2012, 06:20 PM | #7 | ||
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i wouldnt say hurt but theres still a definite fatigue....definitely the lesser of the two evils
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"Thanks for this!" says: | ginnie (09-11-2012) |
02-06-2014, 06:32 AM | #8 | |||
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Vaporizers are supposed to be good for several reasons. They allow one to avoid many of the respiratory toxins that are released when the material is burned, and not vaporized. Or so I am told.
-Mark- Last edited by Panorama; 02-06-2014 at 07:23 AM. |
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"Thanks for this!" says: | ginnie (02-06-2014), southblues (02-06-2014) |
09-18-2013, 12:51 PM | #9 | ||
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Junior Member
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Quote:
It helps the breathlessness, too. Though I'd recommend using a long water pipe or vaporizer so it's easy on the lungs. Sadly, I live in a state where it's not legal, so I can't take it. It's a shame, because it helps just everything! I was scared to death to try it the times that I did, (I tried it at age 53!), but I was desperate. I researched it out the whazoo, and found it clashes with no meds and basically there's no downside except the whopper of it being illegal. So, back I go to being on a ton of highly dangerous meds that just aren't working anymore. Blah. I just hope that someday soon it'll be legal so we all can get some relief! |
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"Thanks for this!" says: | minalhansen (02-13-2014), SoftTalker (09-19-2013) |
04-28-2014, 05:23 PM | #10 | ||
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Quote:
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