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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-08-2012, 11:09 AM | #1 | ||
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I have been taking 60 mg of Mestinon for 11 months, I now am starting to get Adbominal craps.....
Is it the Mestinon? |
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09-09-2012, 12:08 PM | #2 | ||
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I have severe cramps just before and during menstual cycle (which is abnormally heavy). My neuro said see GYN because those complaints are not due to MG.
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09-09-2012, 08:04 PM | #3 | ||
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[/I]I have MG and I take Mestinon (180 XR + 3-60mg daily) and I have cramps on and off.
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09-09-2012, 08:50 PM | #4 | ||
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Ive lowed mt dose to 30 mg 3 times a day and the pain has gone away and I'm still feeling okay, so I think I'm going to stick with it
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09-09-2012, 09:09 PM | #5 | |||
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Well that answered your question. I'm glad you are doing better.
I don't think 30 mg would cut it for me. I only rarely have abdominal cramps.
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09-09-2012, 10:57 PM | #6 | ||
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Thats the first time I've ever had the abdominal cramps, but the Mestinon was the only thing I could relate it too, so it was worth a try.
When I first started taking Mestinon I was taking 30 mg 3x a day and then as things got worse we upped it to 60 mg 3x a day, but since my Thymectomy in may I have been starting to feel pretty good. I was going to start by cutting back my IVIG from 3 days every 28 days to just 1 day a month and see how I felt, but I guess we will start by cutting back the Mestinon, maybe this is the first signs of remmission for me I can only hope and pray that it is |
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09-10-2012, 08:31 AM | #7 | |||
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I think that the mestinon makes me more sensitive to other things. For example, I will be fine with the mestinon, but if I eat Mexican food or a salad, then I get gut trouble. Either of those food types are fine without the mestinon. It is the combination that kills me. I hope that this is a sign that you don't need so much drugs any more.
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