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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-10-2012, 09:22 AM | #11 | |||
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09-10-2012, 10:15 AM | #12 | |||
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If any of us need respirators, then this is the time of year to plan dances. You could dress as Darth Vader and make a huge hit.
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Celeste |
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09-10-2012, 09:01 PM | #13 | |||
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Ok, so when am I going to get over all the fun I had Saturday night?
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09-11-2012, 02:16 AM | #14 | |||
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Southblues,
I suggest that you document your recovery period, so that next time you know what it involves. It may still be worth the price, but you will know what it is. A few years ago, I presented my work in a conference abroad. I felt that this was a great victory over my illness. But, then it took me about 2 months to recover from this to where I was before. A few months ago, my abstract was accepted for another conference. After getting over the "high" of having my work recognized and acknowledged I had a serious discussion about it with my neurologist and a few colleagues and decided that I no longer need those victories and it is not worth the price. One of my colleagues was ready to present our work instead, so that I would not have to take this journey. On the other hand, an important task I want to accomplish at work can make me crash for a few days. So, every now and then I am ready to pay the price. The same applies to family gatherings or meeting with friends. You can gradually learn the pattern of your illness, and gradually create some order in this disorder. There will still be times in which things will get worse with no obvious reasons, or you can "get away" with overdoing it, but those will happen less often. You can't control your illness, but don't let it control you either. Hope you feel better soon, alice |
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09-13-2012, 05:59 PM | #15 | |||
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What a victory for you! You deserve a trophy and a standing ovation for your courage as well as for your talent. - Mark
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"Thanks for this!" says: | southblues (09-13-2012) |
11-04-2012, 03:06 AM | #16 | ||
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Got a lot on my plate right now, so as I donīt forget - sending you a little good luck charm right now for the NEW concert you have planned for November, Celeste
http://www.worldisround.com/articles...4/photo20.html |
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"Thanks for this!" says: | southblues (11-04-2012), StephC (11-04-2012) |
11-04-2012, 08:51 AM | #17 | |||
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That should bring some good luck!!
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