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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Thought I'd share some info i learned from the support group members
MG'ers shouldn't drink through straw ...I may not be right about reason but I think that it is because can lead to aspirating fluids (immediate or over long term) but best to just avoid straws There are foods we should avoid...don't eat too much magnesium (so my healthy green smoothly each day maybe shouldn't include spinach?) Anyone know of or want to shared list of foods we shouldn't eat? Take mestinon with food, at least cracker, even if it doesn't bother your stomach without because over the long term it will. Again, I strongly encourage attending live support group was well worth the time and 45 minute drive each way! Stephanie |
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