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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-19-2012, 05:43 PM | #11 | |||
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kathie |
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"Thanks for this!" says: | ginnie (09-21-2012) |
09-19-2012, 07:51 PM | #12 | ||
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For whatever it is worth...I had guillain barre very serious paralyzed neck ,down for 5 months in 1984. I was asked at the time if I had had flu or flu shot and I had not back then and ever since I have never accepted it. Now no shot, no flu and I have MG, go figure!
I do have hashimotos hypothyroid dx 2006 Last edited by StephC; 09-19-2012 at 07:52 PM. Reason: Forgot |
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"Thanks for this!" says: | ginnie (09-21-2012) |
09-20-2012, 07:17 AM | #13 | ||
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There is a connection to virus, and some dang disease following it. I got a virus of some horrible nature when I was 29. After 20 or so doctors, wondering why my hair was falling out in clumps, I went to Mayo clinic. Auto immune diseases have this connetion. I now have 4 different auto immune problems. fun fun fun. In my case my t @ B lymphosytes are not in sink, and attack me as a forien object. I wish you all the best. I am sorry you have MG ginnie
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09-20-2012, 09:03 AM | #14 | |||
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It is possible that all autoimmune diseases are caused by viruses.
I can see two ways this could happen. These are my ideas only. As far as I know, there is no proof or evidence that they are true. 1. The virus invades the DNA of the person's immune system cells and makes them go haywire. 2. The virus attacks other tissues (in our case the neuromuscular junction) and in the immune system's efforts to rescue us, it accidentally starts attacking our own cells. Kinda like a dog that is killing the fox in the hen house and then develops a taste for chicken. Once a dog starts to eat chickens, it is hard to break him of the habit.
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Celeste Last edited by southblues; 09-20-2012 at 05:44 PM. |
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"Thanks for this!" says: | ginnie (09-21-2012) |
09-20-2012, 11:51 AM | #15 | ||
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I know you are spot on. It was explained to me like that from Mayo clinic. They didn't even identify the virus, but did see the effects on my immune system. thanks. ginnie
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"Thanks for this!" says: | southblues (09-20-2012) |
09-20-2012, 05:32 PM | #16 | |||
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Wow. Maybe I should get a job at Mayo Clinic in their "thinking" department. Lol.
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Celeste |
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"Thanks for this!" says: | ginnie (09-20-2012) |
09-20-2012, 07:03 PM | #17 | |||
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I keep wondering if the RSD, thyroid and MG are all related. They have very similar symptoms. kathie |
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09-21-2012, 12:17 PM | #18 | ||
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I agree with all of you. Maybe you had a different virus. I know I had the swine flu H1N1 because I had all the symptoms and it was when was a pandemic here. I was lucky that when I made it to the hospital I didnt have to wait cause I would just passed out.
I saw a video from a Dr. in Illinois which also said that is not genetic, is just like what we know. My sis that is a neurologist has Lupus and she got it after getting pregnant from her last son. She thinks am just another victim of Lupus but I always come negative... You all have mentioned medicines I never heard, I only take mestinon....for what is the other meds? Also lots of the medicines that you all mention that are bloquers for neurological system, are the ones I take daily. What about weight? Are you all been able to control your weight or been in prednisone its been the killer? |
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09-21-2012, 02:36 PM | #19 | ||
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Elder
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Virus started, then alopecia universalis, asthma, arthritis (severe) barretts esophagus (yes connected) degenerative joint disease, degenerative disk disease, RSD or PN and a partridge in a pear tree. fun fun fun. I don't have MG. but have been tested for that as well as several biopies of thyroid. Have upper GI on monday, biopsy as barrretts is pre-cancer. All this stuff is related. No doubt in my mind, or in any of my doctors minds either. I was in a trial study for 10 years, with an auto-immunosupressant called DNCB. I was healthy for the trial. soon as I quit, well it all came back and with a vengance. Had TypeII Asian flu, 2003 took 8 weeks to kick, now that is not normal....got it on a cruise, no surprise there, that is the last floating petri dish I go on!. I am sorry we all suffer from these things. I have a feeling after reading Silent Spring by Rachael Carson, that contaminants in the enviromnent, kicked the whole shebang off. The book is worth reading to those who suffer from auto immune diseases. I wish all of you the very best, and I will keep us in my prayers. ginnie
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09-21-2012, 07:10 PM | #20 | |||
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Best wishes, kaithie p.s. Cait is Irish for Kate |
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"Thanks for this!" says: | ginnie (09-21-2012) |
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