Also, many neurologists will be glad to promise you that with their treatment (and each of them have his/her favorite approach) you will go into complete remission and lead a completely normal life. The question is what have they got to base it on.[/QUOTE]

I would run from a doctor that made that promise! As lawyers we are explicitly prohibited from guaranteeing outcomes, im surprised no such rules apply to doctors.

Funny i am seronegative and have negative emg (most likely becsuse no one told me not to take mestinon) and only slightly abnormal sfemg (both done within hours of taking pills) but my doctor does not seem concerned with that and we are proceeding with what i think is standard first line teatment, mestinon which is helping but not enough, prednisone which hasnt started helping yet and if no help from prednisone after 3 more weeks than we will consider next steps which i think he is thinking plasmapherisis. So all in all it seems to me it would be unreaonable for me to go to someone else for another opinion.

My impression is my doctor w more concerned with excluding other illnesses via the emg, ncs and sfemg.

I have never had a doctor guarantee a cure or even really suggest that it might work. I highly suspect that I am the only MG patient that any of my doctors has treated.

I was taught that as a veterinarian, I was not allowed to guarantee cures. I was told it would get me sued. Then I would need a good lawyer.........

I am worried about the EMG. I have/had RSD in my left foot. I had lots of EMGs in the past and I can tell you they are extremely painful on a limp that has RSD. I am also not sure how the RSD will effect the EMG diagnosis for MG. I hope they will do it on a different limp. What limp do the perform the EMG? With RSD they did it on both legs so they could compare the differences. On my good leg it only felt like a humming sensation, on my bad leg it felt like I had stuck my leg into an electric power generator. I do not look forward to that test but I guess they cannot do a diagnosis without it.
kathie

For me wasnt too painful except when they trried to do that muscle in neck (i dont know what it is called but it is that weirdly sensitive muscle that your older brother would always grab, paralyze you by). Anyway that was too sensitive for me to be able to stay as still as i needed to so they just moved on to another muscle.

Good luck, hopeit isnt too painful