Thanks all again for posting
Today I had an awful day at a doctors appointment, it seems like my doc is just not getting what Im saying. Now I have to lower the prednisone dosage, without any substitutes... 1/4 down, just like that.
I do not believe it is a smart thing to do.... Im going to try 1/8 firs, see what happens. Im still weak but whatever. Atfter the appointment I was home, couldnt smile or talk normal for over 3 hours. And my eyes were droopy.
But, there is no harm is lowering the dosage, maybe even 1/2 down.
I don't get it, just don't get it.
Oh and I officially have diabetes caused by medicine now, so have to use insulinstuff. Grrrrreat.

Specially thanks to you anacrusis, made me smile (between my tears today).

SO SORRY TO HEAR YOU HAD A ROUGH DAY.........MY NEURO WANTS ME TO GO DOWN 1 MG PER MONTH (!) WHICH I FIND SLOW AS HECK, BUT SHE KNOWS MY MEDICAL HISTORY....

ALSO, TRULY SORRY TO HEAR ABOUT THE DIABETES. MG SUXX. NO OTHER WAY TO PUT IT.

MYNAME WAS ENTERED INTO THE CONVERSATION, SO I THOUGHT I'D RESPOND. NO IM NOT DOING BETTER. IM A "CHRONIC" CHRONIC - PER ALL OF MY DOCS - BEEN ALMOST 7 YEARS NOW. DO I HAVE HOPE? YEP! EVERY DAY! FAITH? PLENTY OF IT OR I WOULD HAVE GONE MAD! HAS MY LIFE CHANGED? YEPPERS!
I BLAME THE DRS FR NOT DX'ING ME YEARS AGO WHEN I HAD SYMPTOMS! I BEGGED FOR HELP. THEY TOLD ME I WAS "DEPRESSED"......SO WHEN I WAS FINALLY DX;ED MY FACE AND BREATHING WERE GONE AND HAD TO SPEND TIME IN THE ICU. HAD THYMECTOMY. TAKE STEROIDS. I GUESS I DIDN'T PITCH A BIG ENOUGH FIT. NO MORE. IF THEY DON'T LISTEN, THEY ARE GONE.

HOPE YOUR DAY GOES BETTER!
ERIN HERMES

This thread is about YOU and you asked us all what we think and you got quite a lot for your money.

Here´s what I think........

I am going to visit you in a couple of months and make you smile once again

And then I´m not going to leave until I have made you laugh

And all of that - without undermining the seriousness of this disease.................