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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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"With appropriate treatment, myasthenia gravis can usually be effectively managed with little impact on life expectancy. However, about 10% of the patients have life-threatening respiratory muscle involvement."
When I was first diagnosed with MG (after a year, you're just crazy / it's stress / it's eating disorder), I was told by my doctor I had nothing to worry about. He said: it's a disease that's eaily treatable, there's no impact on life span. Just take some mestinon, eat 2 eggs a day and you'll be okay! Well, things turned out differently (crisis, wheelchair, etc). But still, when I looked up MG I found stuff like "With appropriate treatment, myasthenia gravis can usually be effectively managed with little impact on life expectancy." But...no one told me this "appropriate treatment" DOES effect your life expectancy. Prednison can cause diabetes (check!), heartproblems (check!), addisonlike reactions (check!), osteoperoses (check!). Immune supressant can cause multiple damaging problems, like livercirroses (check!), kidneyproblems, infections, cancer. All stuff that does have impact on life expectancy. I just find this a "funny" contradiction. |
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