Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

Reply
 
Thread Tools Display Modes
Old 05-29-2009, 11:41 PM #1
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Smile Love IV IG!

Hi Lois! I looooooooove IV IG!
My first experience scared the heck out of me, I was in the ICU with people trying to put tubes in every part of my body - so the PICC line was a pain in the butt!
That being said, I LOVE IV IG! It literally saved my life! Before it I was unable to to anything - even swallow ice chips! Once the drs had that going full speed in my veins I felt AMAZING!
I go in every month for another round of it......they have slowed it down to 144 mL an hour - I was up to 360, but my neuro was worried about kidney damage down the road.
I have never had bad side effects - ever! I don't even take the obligatory Tylenol or Benadryl b/c I do not need them! I do take my hosp mug and drink all day long! All day! In fact, that may be why I've gained so much weight - I drink juice, tea or oj all day long........
If your friend can tolerate IV IG then they are going to love it! I am so grateful to be able to get as often as I do!
Big hugs
Erin


__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
IVIg teri Peripheral Neuropathy 15 04-13-2009 05:16 PM
Alan's in the Hospital/ IVIG!!!! MelodyL Peripheral Neuropathy 40 03-10-2007 09:52 PM
Ranting: Bad IVIg or just went in too fast... Gabe Myasthenia Gravis 7 11-16-2006 11:55 AM
Immune disorders and IVIG Silverlady Peripheral Neuropathy 4 10-30-2006 01:39 PM
Ivig Silverlady Neuromuscular 3 09-16-2006 08:04 AM


All times are GMT -5. The time now is 07:19 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.