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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Hi Lois! I looooooooove IV IG!
My first experience scared the heck out of me, I was in the ICU with people trying to put tubes in every part of my body - so the PICC line was a pain in the butt! That being said, I LOVE IV IG! It literally saved my life! Before it I was unable to to anything - even swallow ice chips! Once the drs had that going full speed in my veins I felt AMAZING! ![]() I go in every month for another round of it......they have slowed it down to 144 mL an hour - I was up to 360, but my neuro was worried about kidney damage down the road. I have never had bad side effects - ever! I don't even take the obligatory Tylenol or Benadryl b/c I do not need them! I do take my hosp mug and drink all day long! All day! In fact, that may be why I've gained so much weight - I drink juice, tea or oj all day long........ If your friend can tolerate IV IG then they are going to love it! I am so grateful to be able to get as often as I do! Big hugs Erin ![]()
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Erin . |
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