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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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I had IVIG first in the ICU. When I was admitted I could not chew, swallow or hold my head up. I was still breathing on my own but my diaphram was really weak. The IVIG started to help almost immediately. Within 4 days I was able to eat regular food, hold my head up and swallow liquids without choking.
After I was discharged from the hospital, it was a few weeks later and the great affects of the IVIG began to wear off. I started to feel crummy again. So I got the insurance company to let me have outpatient IVIG. It took 4 days at the Infusion Center. THe first day took 12 hours because they dripped it in really slow to make sure I didn't have any reaction. The next three days it only took about 7 hours. I felt great afterward and so far the good affect is holding. I am so grateful for IVIG. Its like a miracle. |
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#2 | |||
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Member
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That is really encouraging....Thanks so much for the replies!
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