I have not been exercising much since April. CBC was normal in May, abnormal in Septempter.

I tried a little short jog last night and once again met with the breathing issues where it felt like I was gasping for air. So I slowed it down and got in a nice brisk 3 mile walk. I felt great last night but this morning I am feeling a bit weaker especially in my hands. Not sure the two are related but I am assuming they are. Had the CT scan yesterday as well and waiting on the results from that. I am also wondering if some of the weakness is a side effect from the dyes used.

I am going to try and keep a regular walking schedule until I feel good enough to get back running.

I had a repeated CBC done 2 weeks ago when I saw the neurologist. I dont think she was going to re-order but I specifically asked for it. My result came today and the WBC and Neutrophils were elevated slight more than 1 month prior. I will be calling tomorrow but I am a bit freaked out because I have no signs of infection. I am waiting to get scheduled for a CT to r/o Thyoma. I am negative for antibodies and awaiting MuSk results. I just wish there was a clear answer to what is going on in my body!

Lesmom, I think you need to get a referral to a hematologist. A high white blood cell count, especially going higher, is nothing to ignore. Please see an expert about this!

Hi Roger,

Sorry I just saw what you wrote now.

I don't know if my answer is still relevant, but I think you should always do a little less than you think you can.

Initially, you will probably err on doing more, not less. Because, in the early days of MG it is hard to comprehend how much less we can do. (at least this was so for me). You think you have done nothing, when you have already exceeded your limits.

In my opinion, any sign of weakness following exercise (which can be up to 48 hours) should lead to a slight decrease in the exercise level.

Once you find the optimal level and you are stable for a few months, you can gradually increase it, in very small steps.

Also, make sure that you have proper nutrition before and after your exercise (this is true for everyone, not only MG patients).

Hi Lesmom,

I agree with Annie that your elevated white count should be evaluated properly. Most neurologists wouldn't know much about it, just like most hematologists wouldn't know much about MG.