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Old 10-11-2012, 04:36 AM #1
RavenC
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Originally Posted by southblues View Post
I think the bank and the car dealership would be nice.
People often think that I am sad or depressed.
Other people think that I smoke pot.
Droopy eyelids and slurred speech with a staggering gait will do it.
I never get free stuff! I do however get a lot of:
-"what is wrong with you, do you need an ambulance?" (they think of a stroke, or f.e. when I suddenly fall on the ground)
-people doing stuff for me without me asking, but just because of a wheelchair.
-"how brave of you!" when Im in a wheelchair (?)
And, most of the time people think I'm lazy and using pot. I often have a "tired" expression, stare into nowhere and a bit of overall weakness. And because Im young, no one ever suspects I can be sick.

When I have to sit on a chair in the supermarket, the old people laugh: you must be tired! (sarcastic) or, don't be so lazy. but free gifts? Ooh, I wish!
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Old 10-12-2012, 09:51 PM #2
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Roger, I'll have to try the shoes, they sound like a fun diversion from the face. Kathie, loved your bank idea! LOL

Celeste and Raven, wow, I never thought about looking like a pot smoker. I have facial flushing, so I've been mistaken for a lush. Raven, I can really relate to the other reactions you described. Thanks for sharing your experiences. Maybe you will get a free gift soon! (It would be nice if people who felt bad for me would donate to medical research instead of giving pity gifts, though.)
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Old 10-13-2012, 07:29 AM #3
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Is facial flushing caused by MG? If so, does anybody know why?
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Old 10-13-2012, 11:12 AM #4
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I am still going through the diagnosis process for MG, but I go way beyond facial flushing. My whole body gets physically hot and profusely sweats like before you would passout but I don't. So to cool it down I out on the air conditioner and fans and drink ice water, This can go on for hours. Even when I get my outside body cool to the touch, my inside is still excessively hot. This always happens when my muscle weakness and unsteady gait is at its worse.

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Old 10-13-2012, 03:45 PM #5
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Long before I had MG symptoms, I would get all red and flushed. Nobody ever figured out why. It is not really happening now. I am, however, on mestinon.
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Old 10-13-2012, 05:45 PM #6
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I always attributed it to when the antibodies are attacking and causing inflammation since it usually just preceeds the onset or exacerbation of symptoms.

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Old 10-13-2012, 06:06 PM #7
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Me too getting red, flushed and not so much since mestinon. Not my face though so much as arms, chest.
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Old 10-13-2012, 07:58 PM #8
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Now I wonder if I am just crazy because after reading this earlier today, I had a terrible spell of heat, sweating, flushed skin this evening. I also had double vision.
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