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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Guest
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Quote:
-"what is wrong with you, do you need an ambulance?" (they think of a stroke, or f.e. when I suddenly fall on the ground) -people doing stuff for me without me asking, but just because of a wheelchair. -"how brave of you!" when Im in a wheelchair (?) And, most of the time people think I'm lazy and using pot. I often have a "tired" expression, stare into nowhere and a bit of overall weakness. And because Im young, no one ever suspects I can be sick. When I have to sit on a chair in the supermarket, the old people laugh: you must be tired! (sarcastic) or, don't be so lazy. but free gifts? Ooh, I wish! |
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"Thanks for this!" says: | Geode (10-12-2012) |
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#2 | ||
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Junior Member
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Roger, I'll have to try the shoes, they sound like a fun diversion from the face. Kathie, loved your bank idea! LOL
Celeste and Raven, wow, I never thought about looking like a pot smoker. I have facial flushing, so I've been mistaken for a lush. Raven, I can really relate to the other reactions you described. Thanks for sharing your experiences. Maybe you will get a free gift soon! ![]() |
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#3 | |||
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Member
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Is facial flushing caused by MG? If so, does anybody know why?
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Celeste |
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#4 | |||
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Member
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I am still going through the diagnosis process for MG, but I go way beyond facial flushing. My whole body gets physically hot and profusely sweats like before you would passout but I don't. So to cool it down I out on the air conditioner and fans and drink ice water, This can go on for hours. Even when I get my outside body cool to the touch, my inside is still excessively hot. This always happens when my muscle weakness and unsteady gait is at its worse.
kathie |
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#5 | |||
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Member
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Long before I had MG symptoms, I would get all red and flushed. Nobody ever figured out why. It is not really happening now. I am, however, on mestinon.
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Celeste |
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#6 | |||
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Member
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I always attributed it to when the antibodies are attacking and causing inflammation since it usually just preceeds the onset or exacerbation of symptoms.
kathie |
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#7 | ||
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Member
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Me too getting red, flushed and not so much since mestinon. Not my face though so much as arms, chest.
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#8 | |||
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Member
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Now I wonder if I am just crazy because after reading this earlier today, I had a terrible spell of heat, sweating, flushed skin this evening. I also had double vision.
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Celeste |
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