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Old 10-29-2012, 07:56 PM #11
AnnieB3 AnnieB3 is offline
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AnnieB3 AnnieB3 is offline
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Alice, I'm not sure what prompted this thread but I certainly appreciate your intent. I have to say that I think everyone here deserves those kind of thanks. So thanks to everyone for being here too.

Fred, MG is a progressive disease but how it progresses for everyone is different. In women, for example, estrogen fluctuations can have an adverse effect on MG. There really is no way to predict how your MG will progress. Sorry, there are no easy answers with autoimmune diseases. Just take the best care of yourself that you can.

Jana, You so sweet. I love how your mind works too. Here is how I put it in my book, under the "MG Experts' Crisis" vignette.

Quote:
Or is MG only a "progressively debilitating" disease when you need to obtain research money for mice studies on how to treat it in the future and a "well-understood and easy to live a normal life with" disease when a patient needs money spent to have MG diagnosed and treated right now?
Do you guys have times of the year when a load of family stuff happens all at once? This is that time of year for me. My MG has stunk because socializing uses way too many muscle groups all at once. And now I'm "trying" to rest up in order to carve pumpkins tomorrow. Yeah, we'll see.

So that's why I've been AWOL, Anacrusis. Love the many thoughts about that. And icons. I laughed when you thought I might be back in school. I wish. Although I learn something new every day, like how bad I am at being consistent at anything, even though I'm tenacious as H@!!. MG should be ashamed of itself.


Annie
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Old 10-30-2012, 04:10 AM #12
Anacrusis Anacrusis is offline
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Quote:
Originally Posted by AnnieB3 View Post
My MG has stunk because socializing uses way too many muscle groups all at once. And now I'm "trying" to rest up in order to carve pumpkins tomorrow. Yeah, we'll see.
Annie
Oh I SO needed to hear someone say this ´out loud´ and at this time of year .....my muscles are so looking forward to January

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Old 10-30-2012, 09:53 AM #13
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Annie, I completely forgot about your annual pumpkin carving!! May we see some pictures?? Pretty please?? IF you have time and energy when it is all over!

I'm really looking forward to reading your book! Are you gonna use a "catchy" nom de plume like Myra Green? (Initials for MG?)
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