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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-30-2012, 12:35 PM | #1 | ||
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Junior Member
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This comment that Annie made really has me curious.
"In women, for example, estrogen fluctuations can have an adverse effect on MG. There really is no way to predict how your MG will progress. Sorry, there are no easy answers with autoimmune diseases. Just take the best care of yourself that you can." I have noticed a MONUMENTAL connection between my MG symptoms and my menstrual cycle. I've mentioned it to both my neurologists, and endocrinologist. My symptoms flare dramatically about 5 days prior to my cycle as well as the week of... which is two weeks of every month. Am I the only one? Can't I just go get some parts removed? Would that help? I'm totally willing! |
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10-30-2012, 12:40 PM | #2 | ||
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I have some weird neuromuscular disorder that is improved by IVG (not seropositive MG).. and it is also dramatically affected by hormones- premenstrual all my muscles get weak, esp swallowing and my droopy eyelids!!! Thats when I landed in the hospital a year ago, my symptoms got so bad at that time of the month I couldn't move or breathe!! I'll be curious to hear others responses!
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"Thanks for this!" says: | christa (10-30-2012) |
10-30-2012, 12:47 PM | #3 | ||
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Yes! - ovulate every 3 weeks and hey presto,´enhanced´myasthenic weakness for 2 days before menstruation - every time. (did NOT notice this a couple of years ago when symptoms were much worse) And Shame on all those who attributed my weakness to a menopause I wasn´t even having!!!!
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"Thanks for this!" says: | christa (10-30-2012) |
10-30-2012, 01:07 PM | #4 | ||
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Senior Member
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Yep, add me to the club. I almost always flare a few days before my cycle begins and feel better a couple of days into the cycle. I have never had PMS, but my MG flares follow the PMS schedule.
Once I talked my ob/gyn into supplementing my progesterone at the end of the cycle, thinking that it was the drop that was setting me off. I tried it and it made me sick, so I stopped taking it--and fell from a higher level--and ended up in the hospital for a week. So, be very careful if you decide to mess with the hormones. Anyway, this phenomenon has been studied a bit. Two thirds of pre-menopausal women with MG experience the pre-menstural MG flare. http://www.ncbi.nlm.nih.gov/pubmed/9559997 Abby |
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10-30-2012, 01:21 PM | #5 | |||
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Junior Member
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Riding my bike does not seem to effect my MG but does tire me out. Sorry I could not resist!!!
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10-30-2012, 01:50 PM | #6 | ||
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Junior Member
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Ha! I'm just jealous you can ride your bike! Yes that was all too tempting to say I'm sure, I left that wide open...
Last edited by christa; 10-30-2012 at 03:48 PM. Reason: typo |
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01-15-2013, 10:44 PM | #7 | ||
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Quote:
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01-16-2013, 08:04 AM | #8 | |||
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I use hormone replacement therapy. So far it has neither cured me nor killed me. Without it I have a lot of symptoms that could be described as perpetual PMS, but I don't think that my MG is changed by it one way or the other. I could be wrong. I have been on if for several years. (I had a hysterectomy several years ago.)
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01-16-2013, 09:57 PM | #9 | ||
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JenniM- yes prednisone can "mess up" your cycle.. .. not sure to what extent, but I believe people may not have a cycle until they come off of it.. that's a nice side effect!
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10-30-2012, 01:23 PM | #10 | ||
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Junior Member
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Yes. And No.
This is complicated. I had to have an emergency partial hysterectomy a year before my MG was diagnosed. Doc left ovaries. But I did not have the "cycle" anymore. So I can't say yes or not definitively. A couple of years after MG diagnosis, gyn said I needed to take estrogen supplements to help with estrogen. However, when I started on oral estrogen supplemention - my MG was greatly exacerbated. Not to point of crisis. I had to stop taking oral estrogen. Here is a little PubMed statement about menstrual cycle and myasthenia gravis: http://www.ncbi.nlm.nih.gov/pubmed/9559997 |
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