I just got more bloodwork back from my follow up appointment. My lems test were negative and so were my mg, however my achr modulating antibodies were 20. And normal is 0-20. I have never mounted antibodies to much ( my titers/antibodies for vaccines and illnesses I have for sure had are always negative). So I was curious If or what that could mean?

They are doing repetitive stim in a week. But I am on ivig so I don't know if that will affect that test

Anyone know anything about this, or anyone had a positive one of these, and if so how positive was it? I just don't know if it could be a hint at a diagnosis or not!?

My recent modulating antibodies were at 41, and on my test it showed that anything above 25 is positive. I'm not sure if the test you took has the same parameters as mine though. It also shows that anything less than 21 is negative. I've read that some people can be negative and have anti musk antibodies. Maybe you can mention that to your doctor.

Over the past ten years -- the first test was positive, the next neutral, and then negative, and now back to positive again.

Never had an IVIG before, so I don't know how that might affect your repetitive stimulation test.

I've given up looking for answers several times because doctors didn't want to dig deep enough, or they were ordering the wrong tests, but now my body is telling me that I have no choice but to get answers. I'm not sure what your symptoms are, but if your muscles are weak don't give up until you find an answer.

Thanks so much for your reply QUandry ... I hear ya.. I really tried to be in denial and ignore my symptoms, but my body thought otherwise.. I was told by several dr's that I was just a stressed out working Mom (I was a few months post partum).. I told them I thought that would be great if that was the case - best case scenerio I'm a head case right?? They would perform a test, it would take weeks to get back, if that was negative do more and wait.. all while I was deteriorating and couldn't work, hold a fork, take care of the kids.. finally I couldnt' breathe and I got admitted for IVIG..
The range of the tests I did was 0-20 is negative, and I was 20... I have never mounted antibodies to vaccines or illnesses I have had.. So that messes up a lot of these antibody tests for me.. I have times where I ignore this all well, but in general it affects every single second of my life since my body just won't work, so even though sometimes the dr's make me feel crazy, we do more tests when I'm not burned out on it! Thanks again - Are you planning on doing any treatments?

So far the only treatment I've had is Mestinon, and it seems to be hit and miss. Tonight I can hardly breathe in or out. It's like my chest is full and can't move up or down. Sometimes the Mestinon works good for breathing, but not tonight. I see a doctor on Friday, but if I don't feel any better I'm going to the ER. However, the ER in the town I live in doesn't have any neurologists on staff. and the last time they sent me on a two hour ambulance ride where they did nothing either. I think they need to do the IVIG on me.

Sounds like you do need to do something else!!!! Breathing is not to be messed around with - though I feel like too many dr's see the "normal" pulse ox and write off the breathing as other things - anxiety etc.. it wasnt' until they did the Pulmonary function testing that they realized I was in fact having real problems breathing.. and of course that does cause me some anxiety, wouldn't not being able to breathe cause anxiety in any normal person!?

Keep us updated on yourself, Sounds like the dr's do need to try some IVIG..... or something!!! It really has made a tremendous differnece with myself.. to be able to take care of my kids and go back to work again was amazing after almost 6 months of barely being able to walk across the living room!!