Good idea, like you say, to speak to your doctor especially if you have respiratory involvement in MG. And for those who have more severe symptoms of those muscles, they are supposed to get clearance from a pulmonologist before they fly.
2 years ago I could not fly because my muscles would not hold me upright long enough.
In the meanwhile you have a good flight

Had my´normal´pulmonologist test for future referencing.

The pulmonologist who is actually an open minded COPD and asthma specialist was interested in the following as well, and referred to them as neuromuscular problems:

Breathing problems starting a few years back with 9 consecutive antibiotic treatments
Breathing problems with use of sedatives, flying and during periods of muscle weakness.
He knew that it was rare to have restrictive breathing 12-16 hours after use of sedatives
but wasn´t surprised that with small rechallenge doses of sedatives there would be muscle weakness
always following restrictive breathing in that specific pattern.

I don´t think I had all the tests recommended on this thread but I had at least four (not MVV)

After a metacholine challenge test for asthma my muscles started trembling (especially the weakest ones)
then shaking quite violently and in the end even my head was nodding uncontrollably.

I have to go back for an exertion test and ultrasound of heart next week.

Good to know, thank you! I will try to get in with her before I leave (not until June and then maybe July).

I don't have problems with the muscles, and I'm not sure if my respiratory is really worse, or if it's always been at the level it is, I just didn't know it because I only recently started to see a pulmonologist (mainly so I have one in case I am ever in an emergency).


Thank you!