Was diagnosed with MG about 3 years ago ...Was fortunate to get diagnosis within one week !!
Mestinon (60mg/ 4 times a day ) worked quite well for three years . About 6 weeks ago , I started to have extreme fatigue problems ...soo tired walking out to mailbox .
Went to neuro and he started me on prednisone ..( 20mg first week , up to 40 mg second week ) Neuro told me it should start working in about two weeks So far no improvement ..at all . In fact , I'm about 30-40% worse . In past two days , I've fallen twice . Its like my legs below the knees just disappear .
Wondering what others experience is with the time it takes prednisone to work ..?
I'm going back to neuro in a week and wonder what he'll do ...increase dosage , put me on cellcept also ..?
Wife is getting ready for our Christmas party here tonight , and I'm just sitting there watching her work . Its so disappointing ..
Would appreciate any thoughts or similar experiences ..