gosh, that just sounds AWFUL.. I am so sorry you are having to go through, not only feeling awful, but having to experience such insensitivity and them telling you it's in your head...
I got a lot of that "aww your a new mom of 2 young kids, working a full time job".. that can cause a lot of anxiety. ... etc etc... My response was "I hope that this is all in my mind.. as honestly, that would be the best case scenario right? ?? Just put me on some pills, get me some therapy and call it a day".. (I know it's not always that simple of course, however... ).. they didn't know what to say in response to that ,,,,,,

they have likely never walked in similar shoes.. therefore can't understand not only the mind games that we play on ourselves, especially without a firm diagnosis.... or just the stress that every single motion, every single minute of not feeling "normal" anymore can do to you .. physically and mentally.. OF COURSE when you have a physical ailment that interferes with every aspect of your life your gonna be anxious.. i'd worry about anyone who wasn't!! And of course there will also be an aspect of depression... HOWEVER... it's so important for your provider to understand which came first - chicken or the egg... I had a neuro tell me, yes I'm weak, but she thought anxiety was a big part.. however my PFT''s were pretty darn low, and they admitted me into the hospital (exactly one year ago).. I got IVIG and am now a new person, though still not "normal".. I still thinks he thinks anxiety is a big part of it.. but of course i'm anxious.. but it is not the cause of my symptoms!!!

I would say seek a dr that will take you seriously.. though it sounds like with them planning an admit for treatment, they are at least taking you a little seroius?? I feel like my dr's have gotten to the point where we are no longer really testing (besides follow up/repeat tests).. and just say "uh, it's some autoimmune thing with your nerves and muscles, we will likely never know".. I would love to find a concrete- treatable answer, but i'll gladly take just the treatable part too!

Keep us updated, oh I meant to say - have you researched neuromyotonia, or myotonia? the jerking/spasms sound like myotonic "attacks" or something.. if you tap your thumb pad does your thumb go all wacky?? (mine did before IVIG).. that is myotonia from what I know..

Thank you very much for all your responses.

Alice, this link has been very helpful, thank you. I am going to try this paleolithic diet. I will cut out all grains (oats, rice, wheat and corn products), dairy and sugar, including fruit, which seems to be a big culprit in setting off the muscle hyperactivity. Can you advise me of how I can replace the carbohydrate component of my diet? I really want to try not lose any more weight. I have a great book here called The Food Doctor but it doesn't talk about meats or fish in there. Are there any fish or meat I should avoid?

Annie, I absolutely do not believe my condition is a due to a psychiatric issue. I do live in a remote place with limited access to medical help. I need a referral from my GP to be able to see any specialist or visit any clinic. He does not believe my symptoms are psychiatric but says we've done all the tests and there's nothing more they can do. It was him that suspected MG and made the neuro referral, I never suggested to anyone that's what I thought I had, that's what was suggested to me. I have had the diarrhea for six days now. It does seem to come on after eating. I've never been so intolerant to things before, quite the opposite. They didn't do an arterial blood gas but they did check my oxygen saturation, which was normal. I will get the result of this test and the EMG report via the neuro once he has looked at it. I saw my GP last week when all this first started and he said it's up for the neuro to decide, help and test as necessary. I'm not sure how far I would get to go and see him again...

I'm sorry your had this experience too, Bny. I felt so ill the last week the only way I could reassure myself was to tell myself it was my imagination, even though I don't believe that. I'm very frightened I'm going down hill, down down down. My eyes took ten minutes to focus (un-blur) when I got up this morning. I don't enjoy not being able to see well like this. I completely agree about the chicken-egg scenario – why don't they ever ask? Yesterday I ate a banana, and within half an hour I suddenly felt extremely angry, at the brink of despair and then elated all in the space of 45 minutes. My muscles became so hyperactive I felt I had super-human strength and that I could tear up the house with one hand. Then after an hour and a half or so I go back to not being able to even walk across the room and being very weak again. It's very confusing and distressing. It's not my feeling a certain way and then getting the symptoms. It's just I'm not in control of it at all and it's not normal!!! The suddeness of these emotional changes, particularly because they happen in a room on my own, with no external trigger, while I'm minding my own business trying to write an article, make me certain it's not due to anxiety. Well, I'm glad they will admit me, but as they won't even repeat any tests, let alone do new ones, I'm not sure I see what the point is or even why they offered to do it, other than to get me to stop asking awkward questions and leave the office...

I'm staying off researching anything now. I have no clue or way of telling what's wrong with me. I have no experience and no qualification to lead me to a diagnosis. I just have to work at the base level and experiment with things and see what I can find to work.