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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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12-30-2012, 09:30 PM | #21 | |||
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I have been diagnosed for about a year but I have had the problem to some degree for 2 years. I hope that it won't get worse. I would like to hear people's opinion on that as well. I usually can get by; I am not sure how I can get a lot worse and still work.
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12-31-2012, 11:56 AM | #22 | ||
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Quote:
I was like you, diagnosed about 7 mos ago, but have had it for about 3-4 years. Just no one could find it. Best of luck and hope it doesn't get worse. FREDH |
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"Thanks for this!" says: | southblues (12-31-2012), StephC (01-01-2013) |
12-31-2012, 07:12 PM | #23 | ||
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Celeste, fred
Doyou think your symptoms have been same severity since onset pre-diagnosis or do you think your symptoms have gotten worse since time you think of as when symptoms started? |
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12-31-2012, 07:22 PM | #24 | |||
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Some of my symptoms are similar. The eyes may be a bit worse.
I actually think that my leg weakness is better. I was falling frequently. I fell down a flight of stairs in Macon and ended up in the ER about 1 1/2 years ago. I just could not figure out why I fell. I was just walking along, and then I was flying down the stairs. The ER doctor was trying to be accusatory toward my husband which was WAY off base. I didn't notice the leg weakness until I hit the dirt. I would be walking along happily and then I would be down. That does not happen any more. The mestinon most likely helps. I also pay attention to my legs if they feel weird now. Overall, I don't think I am really getting worse now. At least I hope not.
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"Thanks for this!" says: | StephC (01-01-2013) |
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