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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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Sorry that your having such a bad time.
I have no experiance with cellcept, so can't really help you with that. I was just curious if maybe something else might be wrong with you. Maybe thats why the MG is getting out of hand. Some times they won't look for other things, have you considered this ? Even though I havn't been dx'ed with MG I did take mestinon in the beginning. It really helped me out, but then I found that I was also gluten sensitve an I quite eatting that and wow I was able to stop the mestinon. Just a thought, hope things settle down for you. Take care, Patricia ![]() |
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#2 | ||
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New Member
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I have been on cellcept for 2 1/2 years with great results. I have been able to taper down my prednisone dose from 100 mg/day to 10 mg/eod. I had previously been on Imuran but when I started to taper the prednisone I wound up in the hospital 3 times in 3 months for plasma-pheresis treatments. Since starting the cellcept I have not had to have plasma-pheresis or IVIG. It did take a couple months for it to kick in but for me it has been "the" drug that has helped the most.
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#3 | |||
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Member
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Thanks, mamalori! That is exactly the kind of reply we need in order to build up our database of info. Good post, and it will probably help someone in making a decision about their treatment.
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Lois . Last edited by loisba; 05-05-2007 at 09:29 AM. Reason: Forgot which thread I was in! |
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