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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Grand Magnate
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I think the perfect thing for you to do is to see a sleep specialist and have a sleep apnea test!
![]() Wow, that's really showing a common prejudice! ![]() The problem is that you can't hear what you sound like when you're sleeping, which is another reason to have a sleep study. You can also ask that they check your O2 while sleeping, which some places don't do. Do you tense up when you sleep? Some MGers do and are astonished why they are weaker after sleeping. Sleeping normally makes us relatively stronger. There are a lot of things that can cause a headache. Do you have a good pillow that supports your neck? I hope you'll find a doctor to discuss this with. A lack of oxygen while you sleep is not a good thing! Annie |
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#2 | ||
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Member
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Thank yall so much, I appreciate your help!
Singer- do you feel like it's your MG to blame?? (if your able to tell), are you feeling better from your cpap? Quandry- I noticed the same.. when I lie on my side it's not as bad.. but an old shoulder injury makes it hard to lie on my side all night, i always end up on my most comfortable position - my back.. Annie - i didn't mean any offense as far as the body habitus goes.. from what I know being overweight makes people more at risk for sleep apnea, so I was simply stating that I didn't have that particular risk factor for sleep apnea. I'm not sure about the tensing up when I'm sleeping.. I have gone through periods of time when I clench my jaw, but otherwise not that I'm aware of.. I have, however, noticed that I tense up when I am sitting down.. almost all of the time.. But, I do feel almost 100% in the mornings.. and then as the day goes on, my body goes with it! I'll call my dr about a sleep study.. have yall ever heard of the kind done from home? I bet it's hard to sleep at one of those sleep centers!! |
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#3 | ||
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Junior Member
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Hi again! Yes it is from the MG my body works overtime to get the air I need when I am sleeping. They saw this at the sleep study I had and it wasn't too bad to sleep there. I did ok despite the cords etc they hook you up to. I live in Canada so that's how we do it here. The U.S. does do things a bit more progressive in some areas of medicine then we do. Hope you find your answers. MG is a journey of learning.
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#4 | ||
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Junior Member
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I noticed that after I fall asleep, my jaw falls open and since I am breathing through my mouth, I snore or I wake up with a very dry mouth. I think MG causes my jaw muscle to let loose. I've been bunching up my pillow under my chin. It really helps.
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Snoring... | On the Lighter Side | |||
Snoring | Sleep Apnea & Sleep Disorders |