FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
|
02-16-2013, 05:16 AM | #1 | ||
|
|||
Member
|
I can now:
A short Mestinon trial did work as did ice pack on very light ptosis But it wasn´t any psychotherapy, good attitude, diet, exercise program or medication that changed things. It was as if somebody pulled the plug and it took 2 years for the dirty bathwater to empty out. Recovery continued in slow motion as if from a serious myasthenic accident yet with spreading continuing on its own agenda to other myasthenic muscle sets but in a lighter & gradually fading manner. All is now quiet on the myasthenic front........ Thank you |
||
Reply With Quote |
"Thanks for this!" says: | Brain patch (02-16-2013), cait24 (02-16-2013), gr8ful (02-16-2013), pingpongman (02-16-2013), southblues (02-16-2013), wild_cat (02-16-2013) |
02-16-2013, 06:32 AM | #2 | ||
|
|||
Member
|
so glad to hear you are doing so well!!!! So it was all mestinon, no IVIG or steriods or anything else?? that is great!!!! Gotta say I'm jealous!!!- especially of the normal feeling muscles and the prediction of how you will feel in 2 days!!!
|
||
Reply With Quote |
02-16-2013, 07:02 AM | #3 | |||
|
||||
Member
|
I'm so happy for you. Reminds me of when I started this journey. I talked to a local man on the phone and he told me the story of having IVIG and a complete remission. At that time I thought it would work for all of us. Oh! was I wrong.
I just pray this sticks for you. It gives all of us hope. Mike |
|||
Reply With Quote |
02-16-2013, 08:55 AM | #4 | |||
|
||||
Member
|
So glad to hear this! Sounds like a dream come true.
|
|||
Reply With Quote |
02-16-2013, 09:10 AM | #5 | |||
|
||||
Member
|
I am so happy that you are doing well!!!
Are you taking the mestinon now? If so, what dosage?
__________________
Celeste |
|||
Reply With Quote |
02-16-2013, 01:04 PM | #6 | |||
|
||||
Member
|
When I first starting taking Mestinon I felt great. One word of advice though, don't over work your body. I felt so good that I thought I could do everything that I couldn't do before and I soon found out I couldn't do everything I used to do. You might want to try using your muscles slowly and see how you feel the days following.
|
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
My myasthenic arm question! | Myasthenia Gravis | |||
Myasthenic Crisis | Myasthenia Gravis | |||
A myasthenic brain | Myasthenia Gravis | |||
Black Jacket identification | Social Chat |