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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-20-2013, 02:49 PM
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Well, I am still feeling bad and waiting on an sfemg until June so someone can give me a diagnosis and medication. I am just getting out of bed after 16 hours of sleep and i feel very fatigued and my voice is very weak. All I did yesterday was laundry and dishes.
I called John Hopkins and they said they may be able to get me in around April. I need to send my records and they will decide if they will take on my case. Has anyone here ever been to John Hopkins for MG? If so, who did you see? Also any suggestions on how to get them to take my case or take it sooner? thanks, kathie (seronegative) |
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