Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 01-28-2013, 04:58 AM #1
wild_cat's Avatar
wild_cat wild_cat is offline
Junior Member
 
Join Date: Oct 2012
Posts: 84
10 yr Member
wild_cat wild_cat is offline
Junior Member
wild_cat's Avatar
 
Join Date: Oct 2012
Posts: 84
10 yr Member
Default Having doubts...

I just wanted to tell you...

Having sat on it for a week and read up on the various research of Athlete's Overtraining Syndrome, something doesn't feel right.

I can't find anything anywhere that says you would get any of the symptoms that I have with AOS.

I have been trying a pacing program and it has made me frustrated, unhappy and more weak.

I have no idea what to do.
wild_cat is offline   Reply With QuoteReply With Quote

advertisement
Old 01-28-2013, 05:08 AM #2
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default

STOP exercising!

If you have MG, exercise won't be good for you right now.

If you are obsessive about exercise, that's not good either.

If you stop exercising, you'll know - after some amount of time - whether it was the "training" or a disease state.

I'm sorry you are going through all of this. You need a sensible approach and, right now, the only sensible thing is to take away the one thing that they claim is making you ill, in my opinion.

It might be the only way you can get help. And I hope you do.


Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
southblues (01-28-2013), wild_cat (01-28-2013)
Old 01-28-2013, 07:24 AM #3
wild_cat's Avatar
wild_cat wild_cat is offline
Junior Member
 
Join Date: Oct 2012
Posts: 84
10 yr Member
wild_cat wild_cat is offline
Junior Member
wild_cat's Avatar
 
Join Date: Oct 2012
Posts: 84
10 yr Member
Default

Thank you for your support Annie, it means a lot!

I'm in a bit of a catch 22: If I stop exercising I am given the 'of course you will feel weak if you are not exercising' routine.

If I exercise, I'm told that's the cause of the weakness.

I stopped exercising for 3 weeks over Xmas.

I felt much better, but my symptoms did not disappear.

I guess I would need to give it longer than that, but I was told by the physio and neuro not to stop exercising!

ARGGGHHHHHHHH!!!!!!!
wild_cat is offline   Reply With QuoteReply With Quote
Old 01-28-2013, 08:09 AM #4
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Anacrusis Anacrusis is offline
Member
 
Join Date: Apr 2012
Posts: 478
10 yr Member
Default

Quote:
Originally Posted by wild_cat View Post
but I was told by the physio and neuro not to stop exercising!
Who is monitoring you whilst you do this exercise? ....Your cat?
When you have symptoms as serious as you describe there should be some serious
monitoring, observing, questioning & recording going on! Thatīs what I think.

But then who am I to know anything about anything?

Anacrusis is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
pingpongman (01-28-2013), wild_cat (01-28-2013)
Old 01-28-2013, 09:12 AM #5
southblues's Avatar
southblues southblues is offline
Member
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
southblues southblues is offline
Member
southblues's Avatar
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
Default

If there is the slightest chance that exercise could make you worse, don't do it. Do like everybody else. Sit down. Eat a doughnut. Maybe some chips. Please put your exercise program aside.

If you actually have MG, the exercise will make you worse. I cannot hold up for much exercise. I will simply fall down.

Please don't exercise.
__________________
Celeste
southblues is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
pingpongman (01-28-2013), wild_cat (01-28-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
clarifying the word Idiopathic - more doubts filipe Peripheral Neuropathy 9 01-03-2010 12:27 PM
If anyone doubts the FDA... lurkingforacure Parkinson's Disease 4 05-28-2009 03:57 PM


All times are GMT -5. The time now is 12:12 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.