Hi...I'm very interested in your situation as well. Can I ask you what your first noticeable symptoms were? and also how long it took for this to progress to your weakest point?

I have had vague weaknesses for a long time but just figured it was old age or deconditioning, but the thing that got my attention was April of last year, when my heart starting jumping around in my chest and pounding and racing, and I felt really weak and my chest felt heavy and had to concentrate on pulling in each breath. My chest wall felt really weak. i had no chest pain. When I got up to walk, I had to hang onto something and was afraid to let go. I had to go to the ER and was worked up for heart and diagnosed with an arythmia, but didn't think anything of it until I started having more symptoms with the eyes drooping more and more and the facial tightness and progressive body weakness.