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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Member
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I am a little upset they have not done a CT scan on my Thymus yet. I see the neuro-optomologist next month and I am going to ask for a CT of the thymus. I had a large tumor removed from my thyroid 30 years ago. i am hoping they offer to take the thymus out. If they do I am going for it. From what I read, it is the best chance for a full remission. The last surgery exaccerbated the MG and I still have not recovered to my pre-surgery state and it has been almost a year. Even so, for me I think it is worth the risk to not have to deal with these symptoms at all.
good luck kathie |
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#2 | ||
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Junior Member
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No easy answers. It's possible a free lunch is out as well. Error of commission or mistake from omission. Six of one....
It seems it can help more in some situations than others but there is no certainty. It's not very satisfying being on the frontier of medical knowledge. |
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#3 | ||
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Grand Magnate
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Well put. It is a little like throwing the dice. Some MGers do benefit from that risk, however. Only you can decide if it's the right thing for you to do.
![]() Annie |
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#4 | |||
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Junior Member
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Quote:
This right here. It's something that only you and your doctors can really give you an answer about whether you are a good candidate for it, and if it's worth the trouble of the surgery to get some possible relief. I am in stage I/II and both my pulmonologist and neuromuscular doctor are holding off on it, but it is being watched and scanned every certain amount of months. Hope it goes ok ![]() |
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"Thanks for this!" says: | gr8ful (02-21-2013) |
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