NeuroTalk Support Groups - Dealing with double vision

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- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - Dealing with double vision (https://www.neurotalk.org/myasthenia-gravis/184466-dealing-double-vision.html)

Yes when I wore my "funny glasses" in public the kids would point and ask their parents "what's wrong with that mans eye".
Mike

Quote:

Originally Posted by Southern Bell (Post 960106)

I too have experienced double vision which happened right after my diagnosis in 2009. My eyes would lock and I couldn't look side to side. I tried to use an eye patch (moving it from eye to eye) and my neoro prescribed two rounds of IVIG to no avail. I was so sick at my stomach that I couldn't eat.

I eventually ended up in the hospital where I was given prednisone and in a matter of three or four days my eyes were acting properly. Well after four years of taking prednisone (and the dosage being reduced slowly) I now have osteoporosis and a fractured spine.

Good luck finding a solution that does not have the horrible side effects that I have experienced.

Southern Bell
:grouphug:

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I was on prednisone since april 12 and by October I had cataracts and had to have them removed Im 29 still trying to get off of the prednisone having horrible side effects way to fast

Quote:

Originally Posted by tk3891 (Post 961205)

[/I]

I was on prednisone since april 12 and by October I had cataracts and had to have them removed Im 29 still trying to get off of the prednisone having horrible side effects way to fast

I wish I could get off the prednisone, too, as the side effects are horrible, but my doctor decided that since thats working she wants to leave me on it until the consult with Mayo and hopefully they can come up with a better long term solution. Wish it helped my eyes, but would probably take more of it than she's willing to use.

Quote:

Originally Posted by Southern Bell (Post 960403)

Tracy I also have another rare autoimmune illness and have tried 5 or 6 rounds of IVIG (at this point I can't remember) and one round (12 sections) of plasmapharisis and neither did any benefit to correct any of my symptoms. I truly wish I didn't have to go the prednisone route because of the side effects but I had to do something to correct the double vision.

I have to take so many different drugs to help me function and I know all of them have side effects, but I don't know any other way. I know my immune system is very comprimised but I have learned that one thing that helps has severe effects on my body. It's a no win situation. I'm glad you have found a good solution to help you. I also hope backwardpawn can do the same.

Southern Bell
:grouphug:

Southern Bell,

How's your SPS doing lately (better, hopefully)? It really is a no win situation, though. I got such a boost from the Prednisone that I though I could cut back the benzos. Even just half a pill and now I can barely walk :( It has me a little worried that this may be another short term solution. I'll guess I keep everything the same until Mayo now and see what they say and hopefully this lasts that long.

I guess the silver lining is that by just skipping half a pill the doctor at Mayo will be able to see whats going on and, at least for now, I can function.

Tracy 9,

Bless you! I didn't realize you also had Chronic Lymes. As you already know, our son has MG, but our granddaughter has Chronic Lymes with coinfections. One of these problems is enough to knock anyone off their feet. I can't imagine having both Lymes and MG. Praying for your healing and for peace as you deal with these diseases.

Interested