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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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How do you deal with your double vision. I've spent a small fortune on prisms (in fact have a new pair to pick up this week), but the best solution I've found is covering one lens completely with scotch tape (I can't tolerate a patch).
Unfortunately my parent think this looks too unprofessional for work and people at work feel it necessary to point out there's tape on my eyeglasses (yeah, I don't think I noticed the three perfectly measured pieces of tape.) I was just wondering if it really looks that bad or should I just be using the tape? |
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#2 | ||
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Well, it does look kind of strange, and could be distracting in a professional situation. In a perfect world, we wouldn't have to worry about stuff like that, but that's not the world we live in, so here are some suggestions:
1. Continue using the tape and just explain every time. 2. Purchase something more occlusive that would perhaps clip onto your glasses lens. I found some when doing a search on "eyeglass lens occluders." 3. Purchase some glasses with tinting and occlude one lens with tape or other material. The tinting would theoretically disguise the tape better. 4. Buy an occlusive contact lens to wear in one eye. I was personally a fan of the Post-It. I'd stick one on my glasses and then if I needed to get up or talk to someone, it was easy to just take it off first. I agree that a patch is uncomfortable, and I just couldn't get past it emotionally as well. Good luck and sorry you're having DV. ![]() |
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#3 | |||
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My double vision happens in both eyes and happens mostly when I read too long. I just rest my eyes. It's best if I read in ten minute spurts, but I always forget to look away to rest my eyes.
Is the tape used because you only have double vision in one eye? |
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#4 | ||
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Quandry,
DV caused by MG can be "corrected" by covering one eye, since the DV is caused by imbalance of strength between the two eyes. Many will switch the side of the covered eye, to prevent undo strain on the "seeing" eye. However, that never worked for me, as my right eye was so very weak, it wasn't able to track well enough when the left was covered for me to be functional. I always covered the right eye. Hope this helps. |
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"Thanks for this!" says: | Quandry (02-24-2013) |
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#5 | ||
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Quote:
The lenses my doctor just made and I haven't picked up yet have a special prism that lifts everything higher, he said he rarely uses it, but noticed I converge better when I don't look down. I'm afraid its going to cause more ptosis, though. I'll try it, but in the end, I think I'm going to end up either a darkened lens or a frosted lens. Post it note may be worth trying though. Thanks. |
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"Thanks for this!" says: | Quandry (02-24-2013) |
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#6 | ||
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I too have experienced double vision which happened right after my diagnosis in 2009. My eyes would lock and I couldn't look side to side. I tried to use an eye patch (moving it from eye to eye) and my neoro prescribed two rounds of IVIG to no avail. I was so sick at my stomach that I couldn't eat.
I eventually ended up in the hospital where I was given prednisone and in a matter of three or four days my eyes were acting properly. Well after four years of taking prednisone (and the dosage being reduced slowly) I now have osteoporosis and a fractured spine. Good luck finding a solution that does not have the horrible side effects that I have experienced. Southern Bell ![]() |
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