I had like 5 doses of the IVIG done it seemed to do absolutely nothing

Thank you all for the welcome. I do have an appointment this coming Tuesday because everything just seems to be getting worse so anything that could help that I should ask my doctor is greatly appreciated. This will only be my 3rd time seeing him.

When you say five doses, do you mean all in the same week? When I said that the first treatment sometimes doesn't help, I meant the whole first course (usually five days' worth). If they offer you another whole course in six weeks, consider trying again.

Abby

I hate to say this but finding the treatment that works for you MAY take a year or two.
Mike

so sorry to hear you are going through this and with a little one too! I got sick when my youngest was 6 weeks (my oldest was only 16 months at that time - so we had our hands full too)... it broke my heart to be sick and unable to care for them.. but they don't know the difference at least!

Are you Musk positive? As the others said about the IVIG.. i had only slight improvement with the loading dose (I couldn't tell if i was better due to resting in the hospital, or if it was placebo effect).. the 2nd round 3 weeks later seemed to really do the trick.. we have also had to play with the dosage of the IVIG.. otherwise some people just don't respond do IVIG and like others said just have to find the right cocktail - prednisone can make some people worse too.. or it can be the best med for others..

Are you at a local neuro or a university specialist? or MG specialist?