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Old 03-02-2013, 04:53 AM #9
AnnieB3 AnnieB3 is offline
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Join Date: Feb 2009
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15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Shelly (thanks for that), Do you ever get rashes, like to the sun? If so, have they been biopsied? Sometimes SCLE can present with only a rash and possibly Anti-Ro AB's. Which lupus tests did they do?

When I'm in between doses of Mestinon, my throat can get dry and it can feel sore on occasion. Without enough acetylcholine, your mucus membranes can become drier.

Yes, those sound like MG symptoms. I echo what bny said about the CPK and polymyositis. Did your doctor do that test?

It's possible that they didn't do the MuSK antibody test. You should get your records to see if they did.

I hope you get answers soon.

Annie
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