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Old 03-04-2013, 06:04 PM #1
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Join Date: Sep 2012
Location: Newtown, PA
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cait24 cait24 is offline
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
Default And the diagnosis is......

Myasthenia gravis. I got the results of my SFMEG today. They were abnormal. So I can say I have a definitive diagnosis now of MG. I have an appointment next week with the neuro-optomologist. I am going to try to get a referral to the neuro who did the sfemg. I really liked his manner. I feel somewhat validated and relieved that we can progress in treatment now. The neuro mentioned options such as cellcept, IVIG, plasmaphoresis and thymus surgery. I hope I am a candidate for thymus surgery. I feel it is my best chance for a full remission.

I told my daughter. She took it ok but I am sure she has not had the time to research it on the internet. I sure she will come back with more questions and concerns.

kathie
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