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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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hope you all are feeling well.
I haven't posted in a while, but I read alot of threads. I just wanted to stop in and once again thank many board members for helping me cope in the beginning when I thought things were pretty lousy for me. Ive been off IVIG since November of 2012, and I feel good. Neuro feels the cellcept has kicked in after 1.5 years, and was confident enough for me to stop the IVIG. While I'm not the same person I was 4 years ago, dealing with myasthenia hasn't ruined my life as I first thought. I started doing a little travelling again, being retired gives alot of free time. I pace myself. I guess it's a learning experience, just figure out what your body needs and how much you can push. Learn your own limits. But like I said, I'm feeling good, strong most of the time, eyes are working fairly well, no complaints. I hope everyone here finds the right therapy and whatever else they need to feel good. |
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"Thanks for this!" says: |
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