Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

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Old 03-08-2013, 09:36 PM #1
allen L allen L is offline
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Join Date: Jul 2009
Posts: 231
15 yr Member
allen L allen L is offline
Member
 
Join Date: Jul 2009
Posts: 231
15 yr Member
Default hello everyone

hope you all are feeling well.

I haven't posted in a while, but I read alot of threads.

I just wanted to stop in and once again thank many board members for helping me cope in the beginning when I thought things were pretty lousy for me.

Ive been off IVIG since November of 2012, and I feel good.

Neuro feels the cellcept has kicked in after 1.5 years, and was confident enough for me to stop the IVIG.

While I'm not the same person I was 4 years ago, dealing with myasthenia hasn't ruined my life as I first thought.

I started doing a little travelling again, being retired gives alot of free time.

I pace myself. I guess it's a learning experience, just figure out what your body needs and how much you can push. Learn your own limits.

But like I said, I'm feeling good, strong most of the time, eyes are working fairly well, no complaints.

I hope everyone here finds the right therapy and whatever else they need to feel good.
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"Thanks for this!" says:
seishin (03-09-2013), southblues (03-08-2013), StephC (03-09-2013), Tracy9 (03-09-2013)
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