Well I went to my follow-up with my neuro-optomologist today. I had 2 days of extreme weakness. I have had chocking issue getting my snack down to take my mestinon. I take a small snack with mestinon so I can eat an hour later with out chocking issues. I have had several days of choking on the snack. I also had problems with waking up barely able to talk & short of breath until the morning dose of mestinon takes affect. The neuro-opt was very concerned. he wrote me a script for the 180 mg time -release for night and called the neuro. The neuro could not get me in so the doc's decided I should go to the ER to get admitted for plasmaphoresis. SPent the whole day in the ER. Even after the doc called ahead to the ER to make arrangements to get admitted, they had me hang around all day in the ER and then sent me home without any treatment. Quite exasperrating, and now I am even more exhausted than when I started. They told me to just keep upping the dose of my mestinon to get me through to the next neuro appointment ( 5 weeks) when they will explore other treatment options.

I was nervous about going the ER, but I have been feeling so bad, I was relieved to finally get some treatment so I could feel better. I feel even more exhausted now to the point of being non-functional.

I can't wait to tell the Nero-op what happened in the morning. They did do a thorough test on my strength and was amazed at how weak my neck, arms and even my hands were. I always thought my legs were the worst. I just guess I notice them so, because I need to walk. I guess sitting in the recliner all day, you do not realize how weak your neck and hands are.

kathie