Celeste, try not to worry too much, I know how hard that is. It may not be a thymoma, only an enlargement or hyperplasia. If it is a thymoma, I believe most of these are non-cancerous. They have new techniques for surgery that are not so invasive now.

Just try to focus on this if you need a thymectomy, it may be your best chance for a full remission. I will keep you in my prayers and let us know as soon as you hear something.

kathie

Celeste, I was in your shoes a month and a half ago and I think you should do whatever it takes to not worry. If there is a need for urgent action, I'm sure they wouldn't wait until Monday to speak with you.

If you have a thymoma, you and your docs have plenty of time to decide how to deal with it. Thymomas are very slow growing.

If you have a lesser thymus abnormality (like hyperplasia), you have even more time for a decision and may choose to do nothing.

Your results may be normal, in which case, the receptionist can't tell you anything anyway.

The worst is just 'not knowing', but try to find a way to be OK with that. Some things, you just can't know about today and you can't change that. It's best not to dwell on what you can't change.

I hope you get good news at the first possible moment and I hope you don't worry so much about the unknown. I'm sure the news is much, much better than your worst fear.

I called the doctor's office again this morning. They said that he would call me back after 5:00 pm. They would not remotely discuss anything with me. Then I called the place that did the test. They will give me the results if I drive to their office 45 miles away. It would make me miss work which I can't afford to do today.

Hang in there, Celeste. My thoughts and prayers are wish you.
Hoping for an improvement in your condition
kathie

I don't think I have good news. My thymus was normal. I have a small nodule in one of my lungs. I have never smoked. I have to contact my primary care physician in the morning and decide what to do from here.

Oh dear, that certainly wasn't the news you hoped for, was it? I'm sorry you didn't have a clear scan.

My friend Deb was in the exact same situation years ago. She however, DID smoke. She had a VATT thymectomy and removal of her mass at the same time. The mass was negative. It was removed and she went on without any more problems from that.

Try not to worry until there is something definitive to worry about if you can. Just remember there are many causes for nodules, masses, etc and not all of them are bad, or will have a bad outcome.

Keep us posted. Big hugs!

Two years ago on a pre-op xray, they found what they called 3 small cysts in my lungs. They said they were small and that they would watch them. I had a follow up xray this past year and there was no change in them so my doctor is not concerned.

I hope it does not turn out to be be of concern for you to. Did the neuro discus a thymectomy or see any hyperplasia? Let us know how things go.
kathie

Celeste, I'm sorry you are having to face down the unknown. I really hope it isn't cancer. If it ends up being small cell lung cancer, then, obviously, you should be re/tested for LEMS.

When I was at the dentist recently, the nurse said that her Mom had LEMS and had a very successful removal and radiation of the lung cancer. It isn't always a doom and gloom situation.

It's sort of funny how they'll gleefully tell you that you're fine and everything was negative but act like a CIA Op when it's not.

Sending positive thoughts your way! Try to do something nice for yourself in the meantime. Stress never helps.


Annie

I am going in to see my primary care giver today. We'll see what he says and take it from there. I really appreciate everybody's input. I don't even know if I have been tested for LEMS. I really don't think I have.