Yes, the nature of the condition is it will wax and wane. You will have periods of time where it isn't so bad and others when it acts up.

Hi, BobbyLee. Welcome!

Do you talk a lot? If you use those muscles more, or on a consistent basis, they can become weaker. Or MG can make absolutely no sense whatsoever! Did you socialize with family a lot in December, over the holidays? That would tank anyone's bulbar muscles.

Please think long and hard about being immunosuppressed. Does your family have a history of cancer? Do you get infections easily? Maybe a discussion with your primary doctor would help to make the best decision for you.

And being on Pred AND Imuran might not be a good idea. Again, you have to discuss this with your doctors. Maybe even get a 2nd opinion. There is such a thing as being overly suppressed. More isn't always better when it comes to drugs.

Also, if you go on Imuran, the doctor should test you for the TPMT enzyme before you start taking it!

I don't know where you live or what season it is now but be careful out in the hot weather. MG can get so much worse when your body is hot.

I hope you and your docs can come up with a plan that works best for you. Keep asking questions! There's a lot to learn with MG.

Annie

Mine comes and goes too but overall is much better than when I first started. Now I get it if I talk a lot throughout the day, and even then it doesn't ALWAYS go to the point where others can notice ... and sometimes I even ask if they can hear it and they say "no" (but I can feel it and my tongue starting to go "off").



I'm glad yours cleared up!