[sandy56]

My neuro said last week that I needed to be referred to the Mayo for worsening symptoms. Since that time my symptoms continue to progress. I have gone from purely ocular symptoms to speech and breathing issues. Also my vision is bad most of the day with more general body weakness. I am now only working 2 days a week due to fatigue. I have to sleep in recliner many nights due to heaviness in my chest. When I called the office to see what progress had been made I found out they had not started the process at all. The nurse told me they were getting it done as fast as possible (yea right). When I told her my concerns about my progressing symptoms she directed me to go to the local ER if needed. I asked them to call me when the referral finally goes out so I can follow up with Mayo and my insurance. I must say I have lost a lot of confidence in the staff. Anyone have any suggestions on how to move the process along? I have met with another local MGer and he expressed concern over my condition. (thanks bill) I feel I have to take him seriously since I have never seen anyone else with MG nd have no idea what symptoms to worry about.