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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Senior Member
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I'm sorry you have to deal with this, but it is very good to have a diagnosis. There are many treatments that help MG.
My first question for the doctor would be: what sort of drugs can I take? Most people who have MG take Mestinon (pyridostigmine). It helps immediately with the symptoms. In addition, many of us take drugs to stop our bodies from producing the antibodies that are causing the trouble. Ask about your options, how long the drugs take to work, and what side-effects you can expect. Some people who have MG have a tumor on their thymus gland (in your chest). You should be checked for that. Even if you don't have a tumor, you should ask your doctor about having the gland removed, which often helps. You should also ask your doctor to talk to you about what to watch out for. Sometimes people with MG get worse all of a sudden. If you are very weak, or having trouble breathing, or can't swallow, that's an emergency. At the hospital, they can give you treatments to take the antibodies out of your blood, or stop your body temporarily from producing more. Feel free to ask questions here! Abby |
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"Thanks for this!" says: | AnnieB3 (05-06-2013) |
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