Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 05-06-2013, 11:47 AM #4
tealbingy tealbingy is offline
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Join Date: May 2012
Location: Southeastern PA
Posts: 24
10 yr Member
tealbingy tealbingy is offline
Junior Member
 
Join Date: May 2012
Location: Southeastern PA
Posts: 24
10 yr Member
Default Arm yourself with info

It may help for you to read the "stickys" at the top of the list of threads in this forum - so that you have some background on MG before you go. If you are told that you are positive for MG, then you at least know what you're dealing with. At that point, ask around to find an MG (or neuromuscular) specialist, as the condition is rare enough that a regular neurologist may never have dealt with it. You'll generally find the MG specialists at teaching hospitals, if you're fortunate enough to live within a decent distance of a good one. Try to get copies of all bloodwork, too, as you may need to build a file for whatever specialist you turn to.

Ask lots of questions here - everyone is very willing to help you out!
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