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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Hi folks. I am a father of 4 children and am 34 years old. I have some ?s for yall but feel i should update on how the road went.
2 years ago, i began have extreme fatigue and muscle spasms. Had double vision twice but always dealt with working hard to focus. My Dr. sent me to Mayo. 6 dept's and nothing. they believe i had MS but too early to tell. They had me so frustrated tossing me around and thousands in unneeded testing. I stopped seeing Dr.s for awhile due to being emotional distressed. My Dr. kept sending me to different neuro's saying it had to be in my brain. Test after test for MS, they find a few lesions but nothing conclusive. Again put the situation aside because i could not just sit with what they said. 6 months ago, my Dr. started treating my high blood pressure. I was happy to see this and began thinking this was the issue. During that vist, he wanted me to see his neuro "that he trust the most." I was reluctant because i didnt want to re-hash the issues but went again. Got blood work and a MRI. I did not returned to his office because i have been their, done that. I know there is nothing. Went to my Dr on Thursday and and he asked me right off the bat, "what you takeing for your MG." i had never heard of this and asked him what he was talking about. Like anyone out their, i may have screened a call or so but he said they DX me with MG. I am going to his office this week to confirm but am hoping is just a misscommunication. I was not ready to hear this info. Anyway, I know what to ask when talking about MS because thats all anyone inculding my eye DR have said, but what are the need to knows and ?'s i should be asking bout with MG? I thank you for your help. |
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