Hi all;
Just got a new diagnosis of MG based on tensilon test. CT of chest and repetative nerve conduction study negative. Antibody studies not back yet. I have been started on mestinon 60 Mg 4 ×day and prednisone 10 Mg 2×day. Just wondering about side effects that others have gotten; esp those that made you decide to go off it. I have follow-up appointment in 2 weeks.

Sandy

That low dose of Prednisone should be OK. I only had troubles when I was on high doses (60-80mg). He may later put you on Imuran or Cellcept as they are long term drugs used for MG, depending on how you do on just Mestinon.
Mike

Twice a day dosing is very unusual and generally not done. Otherwise, it is a low dose, and hope it works well!

That's a really low dose, I started at 60 Mg prednisone was okay for the first week then bam side effects hit...shakiness,depression,mood swings,nervousness...a few more
.Just be warned this is a mean medication in all ways. Even low doses.

I do really low doses (right now 7.5 every other day) and find that works for me. I will add that I use other meds, plus have had immunoablative chemo to "reset" my immune system. However, even before the chemo, I rarely used over 20 mg per day, and almost always have done every other day dosing, which greatly reduces any side effects.

I'm a pred lover, as it has saved my life more than once. I hope you have great success as well.

Most people do not tolerate pregnisone very well. I am on 40 mg a day and I think I am the exception. It has made my symptoms more stable. I have not gained a pound of water. My mood is better, I laugh and sing now which I do not think I have done in 2 years. I have more energy but I do not have any more strength. It may have been so beneficial to me because I have more than 1 autoimmune disease, so it improved several of them. I have MG, Hashimotos hypothyroiditis, an intestinal component of one of my auto immune disease and perhaps hemolytic or pernicious anemia (high RDW).

So hope for the best and ask your doctor if pregnisone is a short term or long term treatment for you. I would be more concerned if he expects you to stay on this drug for more than 6 months.

good luck
kathie