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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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I was supposed to be on a flight to Italy tonight. When we got to the Airberlin counter to check in for the flight, I was told that I needed a doctors statement that I was fit to fly. What???
Apparently, my husband had emailed to request a wheelchair and asked about the availability of oxygen on the flight. He got back an email saying that we could bring our own oxygen or fill out a request form for them to provide it. A doctors statement that I needed oxygen would have to be included. My follow up Dr appointment went well and I was given the go ahead to travel so we thought nothing more about the email. The airline refused to let me board unless I had a statement that I did not need oxygen. Of course it is a holiday weekend and no one was able to give me that statement from the doctors office. Needless to say, all the stress did exhaust me and I did start having breathing issues and more weakness. We are now trying to get a refund. My husband has booked us on a 4 night cruise on my birthday (5/30), so all is not lost. My family was not too happy I had decided to go overseas, so they were relieved. I guess it worked out the way it was supposed to, but WOW ![]() ![]() ![]() |
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#2 | ||
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Junior Member
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Oh no! I hate today didn't go as planned but have a blast on the cruise
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"Thanks for this!" says: | Fortunatos (05-26-2013), sandy56 (05-25-2013) |
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#3 | ||
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Ah, Sandy, I am so sorry about your trip. I know how much you were looking forward to it! Have a wonderful time on your cruise.
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"Thanks for this!" says: | sandy56 (05-25-2013) |
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#4 | |||
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I am so sorry about this. I know how disappointed you must be.
I am still trying to deal with the fact that with my limited mobility, there may not be another family vacation any time soon. I just can't see how it will work. I am lucky in that my daughter has a lot of friends with very thoughtful parents and has been invited on vacation with each of them. She will get 5 vacations this summer. I am happy for her but miss experiencing it with her. I hope your next trip works out. I think a cruise would be much more relaxing and less stressful for a first vacation with MG. Let us know how it goes. Good luck kathie |
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"Thanks for this!" says: | Fortunatos (05-26-2013), sandy56 (05-26-2013) |
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#5 | ||
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Junior Member
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Love how you try to keep the positive attitude!!!!!! I am trying so hard to stay positive in this and you are an inspiration!!!
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