Sounds like the 2 Neurologists I was seeing. They even wanted me to see a Psychiatrist. They acted like I just wanted to get out of work. Yeah, I want to jeopardize losing my job & health benefits! I did see a Rheumatologist who believes me and told me my weakness & symptoms couldn't be caused by Depression. Also have been having tremors in my right hand, loss my sense of taste & smell, and shuffling gait, along with my other symptoms, which looks like it maybe Parkinson's instead of Myasthenia which explains why my MRI, EMG, and antibodies were negative. Just hang in there in the meantime. I go back to my Rheumatologist June 3rd so maybe we can figure what to do next.

My suggestion would be to start over with a new neurologist. You don't need that kind of treatment!

Good luck!

My sister saw one of the most respected MG Drs at Duke and he saw her sagging face and said it wasn't MG related. He gave her EMG and it came back borderline so he told her she didn't have MG. Hogwash even in his book he wrote that a negative EMG did not mean a person did not have MG. She is now on Mestinon and does great on it.
Keep plugging away you will get results.
Mike

I think all of us need to step back and try to understand the expertise of a neurologist who has gone to school for many years and treated very many patients (no doubt saving many a life and leaving no patient to die prematurely of a respiratory crisis!).

Now, let's start with this:

The following link contains a very famous picture from Posey & Spiller which is known as the "face of myasthenia":


http://www.myasthenia.org.au/html/symptoms.htm


But is this really the face of myasthenia because of the ptosis?

We can determine that it is not. "Unsure81" has "just me" ptosis. Pingpongman's sister had "non-MG-related" sagging face disease, (a condition which is, like Myasthenia, successfully treatable with Mestinon!)

Undoubtedly, there are many different kinds of ptosis and droopiness and also other clues in every patient's face which every competent neurologist can analyze on the spot -- leading to the most amazing conclusions!

There is always more to every simple picture than what meets the eye, to wit:

http://www.moillusions.com/2013/05/p...-illusion.html

At first you see only a fox, but if you look closer, you can see human heads and a variety of animals.

A neurologist's evaluation follows similar principles with the following caveat: when a neurologist looks at your face, he can see things nobody else could even dream existed there -- and not see things everyone else sees!

So, Unsure81, if you should want a really exhausting "exercise", try figuring out the difference between the Posey & Spiller "face of myasthenia" and "just me" ptosis.

Nobody on here can know certainly what you have but it's a good idea to know how the most competent and experienced neurologist must practice his craft.

This is tongue in cheek. Sorry, I'm just in that kind of mood today. But the upshot is just that it can be tough to have a serious conversation with a neurologist

The first neruro I saw did not think I had MG. I had started seeing him for new onset migraine headaches and the beta blocker he put me on for headache prevention brought on the ocular symptoms. When I complained about the ptosis and double vision he did send me to an opthalmologist for consult.

The opthalmologist strongly felt I did have MG and wanted me to have a Tensilon test to confirm. Plans were made to send me to Mayo Clinic. While arrangements where being made for this appointment, my symptoms were progressing quickly. I started having slurred speech, facial drooping and chest heaviness at night. My neuro's office told me to go to the ER for breathing problems.

I did some research and found some neuromuscular experts about 90 min away. I would not have to get an insurance approval if I saw them in the ER. So, my husband drove me there and one of the MG experts was on call that day. I had a positive Tensilon test in the ER and he admitted me for 2 days to do bloodwork and a repetitive nerve conduction study. I was started on mestinon and prednisone.

I am seronegative so far.

Sometimes you have to take matters into your own hands
BTW: My first neuro was very apologetic.