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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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Has anyone tried Huperzine A?
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#2 | ||
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Senior Member
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Just be careful, because huperzine works the same way Mestinon does (it inhibits the enzyme that breaks down the chemical that the nerves release to communicate with the muscles). If you taking Mestinon and huperzine at the same time, you could get too much acetylcholine in your neuromuscular junctions, which can make you weak.
Abby |
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"Thanks for this!" says: | Fortunatos (05-29-2013), wvfox (05-29-2013) |
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#3 | ||
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Member
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I'm relieved that you saw Abby's post. Given your very concerning symptoms, and recent hospital experience, and unless an MD recommended Huperzine, I wonder if it's a good idea for you take anything not prescribed by a physician, just for now. It could make it difficult for doctors to pinpoint problems or successes.
If you are having trouble swallowing your mestinon, ask your doctor if you can place it under your tongue, and let it melt. People find that when prescribed a whole pill, it feels "big" and so some might break it in half, and do it in two parts. |
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"Thanks for this!" says: | wvfox (05-29-2013) |
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#4 | ||
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Member
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I tried huperzine before my diagnosis. I found it to be helpful but less potent than mestinon. I have read that some people use it when they are trying to cut back on mestinon because of GI problems. They would replace one or two doses with it. I have not used it with mestinon myself. I have had very few side effects with the mestinon dose I am on.
Sandy |
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"Thanks for this!" says: | Fortunatos (07-14-2013), wvfox (05-29-2013) |
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#5 | ||
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Junior Member
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Quote:
Last edited by Silver Fox; 07-14-2013 at 07:42 AM. |
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#6 | ||
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Junior Member
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Quote:
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#7 | ||
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I said, "I wonder if it's a good idea for you take anything not prescribed by a physician, just for now. It could make it difficult for doctors to pinpoint problems or successes..."
My comment was not Huperzine-specific. Hello Silver Fox, I'm glad your husband has had a good experience with Huperzine. Many of the new graduates in medicine are receptive to natural medicines because many of the universities are now including this in their curriculum. My neuro has a book of Herbs and Natural medicines on his desk, and is not averse to prescribing them. He said something like, "...Huperzine is so processed that it is five minutes away from being labelled a drug..." |
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#8 | ||
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Junior Member
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Quote:
Maybe I should move to Canada? ![]() ![]()
__________________
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#9 | ||
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Member
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Quote:
![]() My doctor didn't mean processed in a negative way. He meant, it's very close to pharmaceutical grade. Other than my neuro, I haven't had a doctor mention alternatives. More often than not, you have to ask them. |
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"Thanks for this!" says: | Silver Fox (07-14-2013) |
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